
October.. Waiting for that crash.. Standing beside the train tracks.. wind blowing hard and fast against me.. and nothing I can do to stop it.. I feel it though. My whole body trembles as I feel the sheer power and force of the train barreling towards my little family. October.. This month is that train.. […]

Tomorrow morning I wake up to a 3 year old little girl… and it makes me sick to my stomach. and really really angry. I, like all moms, get a touch melancholy about their birthdays.. about how quickly time passes once you are a mom.. But my ridiculous decorating the night before their birthday has […]

Its a grind for us all right now. Just passing our 2 year anniversary of her diagnosis and birthday. Its like the start of our really hard time. And frankly we just really don’t want to do it. I am mad. I am angry. I have done this all before and I just don’t want […]

Her birthday is coming. Like a fucking train. I am staring at a train, barreling right for us and I cannot get us out of the way. I want so desperately to make it a celebration for her .. for them too.. But I don’t know how. I am crippled from the pain right now. […]

Her birthday is coming. .. She should be 8. This should be a celebration. She loved her birthday. I loved her birthday. But now I am dreading it. Terribly. No balloons to blow up.. no birthday chair to decorate.. no candles to blow out. . No presents. No joy. No happy.. But she deserves more […]

The start of Oct. I am excited only for one part of it. The end of most of the Fluttering campaign. I LOVE this campaign. For so many reasons. It raises a ton of awareness and money. Kids are involved and doing it. Kids are saving kids. We partnered with other organizations and allowed people […]

Two days in the books of school for my “not supposed to be the oldest”.. It still doesn’t seem real. Like a fog that he is in kindergarten. Because Jennifer is in kindergarten .. so he can’t possibly be. .. Because if he is.. well then where is she? I know. I know the answer […]

Its all of us.. in different ways. Last night it was just me I was worried about and feeling sorry for .. just me alone in missing her I thought. You would think by now I would know better.. On their birthday cards to me .. both boys had Tony write about forever. Me loving […]
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