We intentionally named the foundation Unravel because we saw the power in a community of people who were inspired and impacted to make change. Like a string pulled from a sweater, we could “Unravel” the mysteries around pediatric cancer to find new treatments. Our role is to find and fund the brilliant scientists who will not only improve survival for our youngest cancer patients, but also help them thrive long after they survive their cancer.
Our daughter Jennifer was diagnosed with Diffuse Intrinsic Pontine Glioma on her 6th birthday. This is a terminal type of brain cancer. She lived only 3 short months from diagnosis until she became “forever 6.” We have four living children, Jonathan, Nicholas, Charlotte, and Bridgette. We formed this foundation in honor of Jennifer, but for our four living children and all children who could experience pediatric cancer diseases. We decided to not just be sorry but active. We invite you to join us in our fight to provide better treatments for pediatric cancer patients.
If you saw us on the street with all of the children we have been blessed to have, you would never know that we struggled hard to earn our most cherished titles of Mom and Dad. Tony and I experienced five IVF cycles, five miscarriages, and one failed adoption before Jennifer gave us those names... She loved to tell people how on October 28th we went from being Tony and Libby to Mommy and Daddy—and that she was the one who made it happen.
We like to call Jennifer our perfectly imperfect little girl … a wonderful mix of salty and sweet. Her big brown eyes with the longest eyelashes had a near-professional eye rollability. She was kind. Silly. Bold... She loved to make people laugh and could make you feel like she was your very best friend.
I am proud to be her Mom.
Sissy Miss was one, among many, of her nicknames, because the thing she most cherished in this world was being a big sister. She was always so excited to hear we were having another baby. Always the first to hold the baby or change a diaper… She is a natural-born mother who never got that chance. The world lost out on the children she would have raised. I always tell people I only potty trained one child, because she handled the rest!
We love her. We miss her. I could and would talk about her all day long, but I think these pictures show her multifaceted and perfectly imperfect personality better than my words ever could.
once we know better, we can do better.