Category: burying a child

Dear fabulous four ..

final blog continued from this entry.. I love you. I screw up with you guys. I know that. I have all these plans and thoughts in my heads of how I am going to do and be so much better. And I screw it up. Lately its been because I have been scared. Its hard work to be sad. Its hard work to allow yourself to hurt. Big. Real Hurts. Losing your sister is my biggest hurt. And I hope so much it always is. *make smart choices I need her to always be my biggest hurt* But you will have your hurts. Big. Real hurts in your lives. So I hope you learn from me. I hope you learn what it means to be brave and strong. Its not what most people think. Its allowing pain. Its dealing with it. Its embracing it. Its learning from it. And when[…]

Dear Jennifer

..continued from this blog.. which is continued from this one. I love you. I miss you. Its hard to feel both of those things. I’m sorry. I’m sorry I’m not always strong enough to do that. Do you know how sorry I am? I have so much I would have done differently for you at that end of your little life. I’m sorry baby girl. Im sorry I was selfish. I didn’t even realize it at the time. I know you are here. Jennifer. I know it. Right now. I know you are right here with me. I can somehow know you are next to me on this couch. But I don’t know how to feel you. I don’t know how to embrace you without my arms. But I know you are here. I know you are so much wiser than me. I know you forgive me. But I don’t[…]

Dear God

… continued from this post… How is it possible? How is it real that she has been gone for almost 5 years. Why? I know I know I know. We aren’t supposed to ask that. I am supposed to trust in your reasons. I’m not supposed to wish it to be anybody but mine. I don’t know how. She was just a baby. She suffered. So much. They ask me. So many parents of kids like her ask me if she knew. I don’t even know. Why didn’t you equip me better to help her then? Why don’t you help me more now? It’s still so hard. Sometimes. Not all the time anymore. But damnit. Its so hard. And I’m f-ing pissed off at you for it. I’m still so mad at you. I’m always going to be so mad at you. Why? Does she know how to read? Does[…]

the pendulum swings..

4 years. When you become a parent time becomes so flexible.. You can look at your 4 year old and feel like they are still so little.. yet be completely unable to remember life without them.. My guess is that never changes?? I think that maybe even my Mom looks at me like that.. However, I do know my grief is just like that.. I cannot believe its been 4 years.. the pain is still so raw and so fresh.. especially right now that I find myself wondering if I can really survive this for the rest of my life.. and.. I cannot believe its only been 4 years. I forget what it was like to parent a healthy.. living, breathing Jennifer. I hate that. I hate not only that its my truth but I hate giving that part of my pain life..  That part that feels like I can’t[…]

find me again..

Sometimes we resist what we know.. this blog is really just a continuation of this one.. And sometimes urges and pushes are so strong we cannot ignore them.. I pulled the boys out of school and took them on a mommy and boys date to the movies. Coco. None of us had seen it… it was only in one theatre 40 mins away.. But I had this strong urge.. we were meant to go. The 3 of us had the entire place to ourselves. It wasn’t nearly as hard as I thought it would be.. Until the final scene.. when my deepest hope for what its like for me and Jennifer now was on screen. The movie ended and we left the theatre and went on the hunt for something to eat at the mall.. We talked as we walked .. in the best boy talking way.. moving and not[…]

What’s it like- living with child loss

Whats it like? What’s it like to be you? I see it. I think that is probably the number 1 question I see burning behind people’s eyes that is never asked. Though it’s hinted to… in the escape of words like I can’t imagine. .. So I’ll tell you.. It’s showing up to drop my son off late at school.. walking him into the cafeteria to get one last hug as he drops off his lunch box. Something is going on.. lots of kids and fun. Its seeing a mom who asks if I am ready for the craziness.. It’s asking what and hearing that its the 3rd grade arcade day. Its the wonder for just a moment.. until you can feel the ground move beneath you.. She should be in there.. And the gym that was moments ago just 15 feet away somehow becomes miles away.. at the end[…]

my friend Grief

Its February. Its here. This month that fills me with such dread.. Its here. And with her she brings my old friend.. Grief. True. Utter. Grief. Grief that hollows me out. This friend.  The one I can’t remember not knowing, yet somewhere along the line, I was able to put in some separation.. Able to call on her .. versus her calling on me.. With this month that friend is back. Holding my hands .. matching my every step. I feel like I am being slowly pushed towards an invisible line and everything in me is fighting against it.. I’m losing though. . Ive always lost to February. I find myself constantly crying. Every time I get in the car .. Even those times my mind feels blank or preoccupied .. the moment the door closes I feel that familiar prick and sting in my eyes.. Grief. She grabs my[…]

prison

I always want to figure it out. I always want to know why I am aching so much more than normal. But even now. Just sitting down behind my computer the tears are already flowing.. And I can’t say for sure why. There is a little girl, she looks very much like my Jennifer. Aptly named, her FB page is Katherine the Brave. And her mom has shared videos of her. And never held back from showing a snapshot of the brutal and harsh reality of DIPG. How it slowly chokes the life out of our children. .. How it tightens its grip..so cruelly slow. Leaving them completely aware of whats happening. ***moments after I posted this Katherines mom posted she had joined Jennifer earlier this evening. I hope they can become friends. And I am so damned sorry*** I saw one recently .. just scrolled past.. I didn’t need[…]

meant to be

**As I was typing the last word in this entry this song started playing.. Open it in another window as you read this.. Because I think she wants me to share her message to me, with you..** ok buggers. ok baby.. ok.. i love you. i love you. i love you I was talking with a friend today.. a new friend from my new life. My AD life.. This friends job is to fundraise for researchers.. well kinda. Her goal is really to raise money to save kids. To stop them from suffering.. from dying. . Its a big deal. It matters and it can be all consuming. The pressure can be overwhelming at times. I get it. So much. .. except I don’t. .. She asked how I dealt with it. Since we are so similar. How do I cope with that anxiety and pressure. The need to do[…]

18 months gone

18 months. I simply can’t believe it. officially a year and half since I have touched you.. since i have felt your warm breath in my face. 18 months since i have seen a new goofy pose for the camera.. I am still in shock over how badly it hurts. Over how much I notice the hole. I think I somehow thought by now I would be more adjusted to this new normal. But I am not. I get asked all the time at the end of this pregnancy if I am hoping for another girl.. if I am ready for a 4th. I smile and say its our 5th we have another daughter. Rarely do people follow up with another question. Yesterday a woman did.. Handing out a sample to my kids at Costco she asked where the other girl was. I told her she was in heaven. She didn’t[…]