Tag: anniversary

the 23rd -12th-

12th. I am supposed to be working right now. I have a follow up presentation at Genetech to prepare for next week. January 12th. Kids are at school and at my moms so I can write it in a solid block of time and get myself prepared. Its a big deal presentation. 1 month until THE 12th. .. ..again.. But I can’t concentrate. Its gnawing away at me. The time that I know is looming and coming too quick.. but also too slow. Because it feels like forever since I held her last. And its only been 23 months.. How will I last the rest of my life?? ..how the fuck will I last the rest of my life???? A year ago we were all packed up for our make a wish trip. Unsure what to expect but so excited for the adventure. Right before we left though.. the first[…]

8th birthday un-party

Her birthday. The second one we have endured since losing her. The anniversary of her terminal diagnosis. DIPG. The same day and the second we have faced without her. A un-party. We escaped with the kids. It seems to be the only way I can even begin to imagine facing these huge milestones. To the beach, a beach house that friends of our family open up to us. I like being somewhere she was. Being able to remember her in one corner. .. or on the stairs or sharing a meal. She was here with us once. Alive and whole. We mostly escaped social media and our phones on the trip. But Tony and I each took a few moments of solitude to escape into the digital world. We saw post after post about our daughter. About moments and memories people made with their children .. because knowing a family[…]

numb

I feel an invisible force on my foot.. trying to push it down.. put the brakes on this life.. Just make it all stop. . In 4 days I will have been a cancer mom for a whole year. In 4 days.. She will truly be forever 6.. because she won’t be here to turn 7. no no no no Today was the one year anniversary of the last full great day.. free day. .. happy day. The day before I picked her up from school and she threw up in her lap.. the day before we took her to the ER and she was admitted. I wanted to do something that symbolized that.. something free and fun. We went to the high school football games tonight, my brother and brother in laws team vs another brothers team.  It was a hour or so drive each way.. nice for me I[…]

..always a flower girl..

Its our 10 yr anniversary. I adore my husband. He drives me nuttier than anybody I have ever known.. but also fulfills me in a ways I didn’t know I was lacking. All day though I remember her.. what a great wife she would have been. What a beautiful bride.. I hate that I will never see my husband walk our first born down the aisle. He is taking me out of town this weekend. Just us.. none of our babies and no Unravel work either. Just us.. I am both excited and nervous. But I know how much I need this time with just he and I. . and her.. I can’t help it. I hope she is there with us. We were fluttered .. like a super duper flutter. And it is incredible. I was lucky enough to speak at a event for Dr Olsen last night in[…]

grieve

Another 12th.. still not getting any easier. Today was filled with chores. .. Chores like breathing, which today I found so difficult to do. I felt like I was living in jello.. every movement slow deliberate and so very hard to execute. I woke up angry this morning. Not wanting to hear any more “I’m sorry’s” So my post on my personal page was similar to my parenting with my kids. Don’t tell me with your words, show me with your actions. In this case, don’t tell me you are sorry SHOW me… show me you are sorry by doing something about it.  I woke up broken.. just completely depleted of any drive or desire to do anything. But the baby was crying so laying in bed all day wasn’t a option. ..At the same time I also felt this immense gratitude for these little lives I am still being entrusted[…]

everything and nothing

I miss her today with all of me. I went for a run. It usually clears my head.. gives me space… But not today.  I am hurting. I remember so clearly 6 months ago. Calling my sister to tell her to come.. then not come.. then come. I wasn’t sure that we needed her… wasn’t really sure how close Jennifer was to her death. But I was afraid… so she came to us. Today I am angry. .. . at everything and at nothing. I remember thinking I could never hurt worse then I did right then. I remember thinking the same thing those first days after she died. Thinking I couldn’t ever hurt as much as I did then. I was wrong. So incredibly wrong. I thought the same today. I thought I could never hurt worse than I am now. And as soon as I thought it, I[…]

because of her

Another 12th.. experienced and gone.. Much like my daughter. The 12th is so bittersweet for me. Its a day to truly go back.. remember and reconnect .. to feel the overwhelming sadness over her being gone for another milestone in time somehow thats a good thing for me.. but then the ache that the distance is ever-growing between us. We got up yesterday and I asked Tony to take us, me and baby Charlotte and our memories to the beach. We went for breakfast and walked on the beach together. I cried a little .. off and on.. We talked a little off and on.. We bought a ton of candy. It was good. It was exactly what we needed.. time together as a couple. Our concentration being on each other.. not a non-profit.. not raising awareness. .. just each other. Husband and wife.. grieving mom and dad. On the[…]

will she

5 months. 5 months. 5 months. ..no .. please .. Once the clock strikes midnight I can no longer say 4 months.. it becomes a whole month more.. Today was a good day. We walked to the library , first time we have been there since last summer…I planned to go once she was in school.. but never got around to it. We packed a picnic and ate behind the building. . .  Jonathan remembered from 2 Halloweens ago.. when he had just turned 3 that we went trick or treating there in a nearby building with her preschool class. I try to placate myself with the thought that they won’t remember this time.. but then he pulls something like that.. A strong memory from when he was so much younger.. and I worry. I try to do things she would have liked these days. These days I am suffering inside without[…]

still brave

As yet another 12th comes closer I start to think about her death constantly. About what I was doing and feeling on February 9th. Remember with me..  That ring.. I remember that day. My friend coming to get it to try to save it for me.. How I hated having it off for a few hours. I love it so much. Its more precious to me than any other piece of jewelry I have ever owned. There are a lot of memorial tattoos ideas I am marinating on.. But that ring marked on me forever is for sure happening. I don’t often re-read my blogs. But I am glad I did with that one.. because it reminds me of who she was. The silly spunky way she would ask for the ring back. . and then give it to me over .. How happy she was to see me wearing[…]

please baby please

I have been avoiding writing tonight. I am struggling with blogging.. because right now I am just emotionally exhausted.. I know when I write I am forced to go into it.. I feel the storm brewing and so much of me wants to run.. and never look back. So I was wasting time on facebook. And I read the update I was so hopeful wasn’t coming about another local girl who was fighting cystic fibrosis.. her parents said goodbye to her tonight. Caley is forever 12 . And somehow it made me want to write.. to be honest with my struggles.. what its like 4 months and a day out. How its still just getting harder and harder. How in the beginning I was so blissfully numb.. how now it feels like daily I am being drug further down into reality. Tony was in a golf tournament today.. now headed to[…]