Category: surviving trio

steady knowledge

Sometimes I really struggle with this new life of mine.. not just the child loss portion of it.. but also the executive director of Unravel role I am in. I miss being a housewife..days filled with cooking and cleaning.. playdates and parks. Its all I ever wanted to be .. a wife and a mom. Its all I ever wanted to do.. raise a house full of kids. But then cancer hit and stole one of mine.. and all of my dreams and aspirations have now changed… Unravel brings so much.. but it comes at a cost. There are times I just want to go back to being only a mommy and wife. In just this new life.. As a mom to 3 living and 1 in heaven.. and wife to a incredible and broken man. I want to be making scrapbooks about her and trying to absorb my little[…]

fantasy

I feel like a wounded animal. I feel like I am slowly bleeding out. I remember being pregnant and dairy products with dates stamped on it past my due date.. how thrilling that was. Today I pulled out strong cheese for the kids and it was stamped with a date past the one year anniversary of her death. . how? why? no? Today seeing that sent a chill right through me. In a few months I will be done with all the firsts without her.. and just onto the rest of time.. Holiday after holiday.. one less.. Day after day being incomplete. I wonder if one day I will get used to it? Adjust to this new life of mine.. without her. Because right now its a lot like a phantom limb. Like I go to stand on the life I was had only to fall down since its no[…]

party

I burnt myself tonight pulling a batch of gluten free cupcakes out of the oven. Cupcakes we baked for a birthday girl that is no longer here. A party that won’t just be filled with all her first grade buddies..Its not even really a birthday party .. its a thank you to all the people that have cared about us over the past year.. We are so very very grateful. I thought it was a good idea.. Now I’m not so sure. I look at the balloons I bought with my 3 littlest.. for the big sister they will eventually outgrow. She loved to decorate the things I baked . They never looked pretty but she was always so very proud .. I will do it with all 3 of her siblings tomorrow. I will give Nicholas his own tray since I know he will stick his fingers in them.[…]

double agent

So why are you doing this? (the whole fluttering campaign)  To keep the promise you made to Jennifer? (Unravel itself) I was asked that today in a interview. I wish I could say yes. But its simply not the truth. I am doing it because I am selfish and I know it could be another one of my babies again.. Or my friends kids.. or my nephew or niece. Experience does not make one immune to childhood cancer. This is why I am committed to Unraveling pediatric cancer. Jennifer is gone. Curing cancer does nothing for her .. i just want my baby back And I am selfish. I am doing this so people say her name. If everybody that orders a kit moves it nightly that 10, 500 houses that see the dragonflies.. and learn the facts.. and maybe they even say her name. Maybe enough people whisper her[…]

Love4jlk

I can’t believe its already September. I can’t believe a year ago I didn’t even know this month was pediatric cancer awareness month. Seriously I look back and it seems just unreal to me that I had no idea about the things that are so ingrained in me now I can’t imagine not knowing.. not living it.. or surviving it as the case may be. A year ago .. we were just a regular family of 6.. A year ago cancer was a word I rarely said.. now I say it multiple times everyday. I should count once how often I say it. A year ago I had no idea my time as her Mama was about to end.. Jennifer.. sweet baby girl of mine. Shhhhh… its fluttering time! Here is what it looked like in our home. The boys were so excited to come out from quiet time to[…]