I am not alone in this. So much of what I feel other parents are also feeling. This is what my friend Kristine wrote on the McKenna Claire Foundations FB page yesterday “We are on a major organizational binge at our house. Our life has been chaos since the day McKenna was diagnosed, which will […]
Everything is different for us. Its not just that we lost our daughter we lost ourselves too. All the old rules have been re-written. And underneath that new writing there is always a ache.. the pain that we didn’t want things to change. No, honestly, we were all really happy with how things were. But […]
Veterans day. A day honoring those that have fought to keep us safe. Those that walked into battle for the betterment of the rest of us. The brave. Heroes. I can’t help it.. I don’t want to do it.. But all I can think is her. My Jennifer showed more strength and fight then I […]
Tonight I should be practicing for a speech I am giving tomorrow. I have only gone through it twice now.. But I can’t seem to do it. Im not sure why. If its something swirling inside of me.. waiting for me to write and get it out.. Or if its too hard to do. Too […]
Are we making a difference? I ask myself that all the time. I dedicate so much of my life and myself to Unravel.. I can’t help but wonder if its really worth it. ..This week it was answered for me In a few unlikely ways.. There was a comment on the blog… one that I […]
I never knew.. never knew pain or despair like this before. I never knew that there is no respite from losing your child. I never knew how hard it would be. I thought I did.. thought I could imagine. .. I couldn’t.. I still can’t. Because I know I am still not at the bottom […]
I was invited to this thing called a nano course here at Stanford. Its a small invite only week long conference. The basic idea is to train some parents/foundation people to be liaisons for the medical community. What that means is much of what I was taught went over my head!! Some easy take aways […]
A friend of mine encouraged me .. strongly.. to go to a blogging conference. Who even knew things like that existed! It really helped me to clarify my focus and my goals. I want to speak her name. Hear others speak her name and galvanize efforts to save kids from toxic treatments and parents from […]
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