Thanksgiving one year ago we invited the first media outlet in to film our family and our story. I barely even remember Jennifer looking like that. So big and round in her face. She hated that. Hated so much how the steroids changed the way she felt and looked. I hated it to. A constant […]
A friend of mine encouraged me .. strongly.. to go to a blogging conference. Who even knew things like that existed! It really helped me to clarify my focus and my goals. I want to speak her name. Hear others speak her name and galvanize efforts to save kids from toxic treatments and parents from […]
We got the mission statement completed. I should feel happy. I should feel relieved. One thing off my plate. .. But all I can think is 20 weeks. Tomorrow is 20 weeks. .. I have never been so sad. I never knew sadness could permeate to these depths of a person without destroying them. I […]
Finally feeling the way I wanted to about being here.. Walking down the street today a young girl and her mother approached me because of my Unravel shirt. She asked if we were here for action days. They also happened to be here from California! The girl is a 16 yr old survivor who brought […]
Looking through the pictures for that last post really got to me.. About what pediatric cancer really looks like.. Its not just bald kids.. or swollen faces. Or feeding tubes and barf bags.. Often times there is something even worse that all of that.. being left behind. And […]
Rarely do I type and erase.. but tonight I have been .. I’m not sure what exactly is holding me back.. I guess mostly fear of being judged.. or misunderstood. But as I start to think about the words that want to come.. I cry.. so I will share my truth. Sometimes its hard to […]
I did it. I think I did ok. Most importantly though I really enjoyed it. For me this was a bit of a test to see how I did with public speaking and if I did ok.. did it feel right. ..? My goal was to hopefully make a change. I am so grateful that […]
My thoughts are jumbled.I am so tired.. circling the drain… Milk in the pantry cereal in the fridge kinda day. Yesterday just totally drained and exhausted me. .. .dehydrated me. I could have stayed in bed all day. But I know thats not fair to Tony or the kids. I got up and realized I […]
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