6 months. Half a year. So long since I have touched her.. yet still so long until I feel her again. “They” say that most kids don’t come through for their parents for a minimum of 6 months… I have been waiting for and dreading this day. Because now I am truly waiting for my […]
I was invited to this thing called a nano course here at Stanford. Its a small invite only week long conference. The basic idea is to train some parents/foundation people to be liaisons for the medical community. What that means is much of what I was taught went over my head!! Some easy take aways […]
I find myself back to a place where I have a longing for my nights to come and write. I don’t know if I am in a transitional period or if it is just a hard spot for me right now. I am brimming with emotions lately.. anger and sadness.. and a sharp desperate ache […]
Memories are all I have left.. Its what us bereaved parents cling to. but when they hit unexpectedly it can be devastating. I feel like I have been hit over and over again today, and I feel so weak. I rarely leave the house to run errands anymore. Her memory seems to haunt me everywhere […]
I had a phone call with one of the aunts of Dannys warriors. She is… they are… amazing and I think they are poised to do good things in the fight against pediatric cancer. . I heard in her a joy.. a hope.. that we lost 5 months ago. A piece of me that I miss. The […]
A friend of mine encouraged me .. strongly.. to go to a blogging conference. Who even knew things like that existed! It really helped me to clarify my focus and my goals. I want to speak her name. Hear others speak her name and galvanize efforts to save kids from toxic treatments and parents from […]
I am sitting down with plans to write about our fluttering awareness/fundraiser.. but I can’t.. there are some other things that are weighting me down.. S0 I will do what I do.. I will write and see where my fingers take me.. I am changed now.. I literally feel differently now since it hit me […]
I am a jumble of stuff.. of emotions.. of thoughts.. Today I said to a friend “…taking care of 4 young kids.. ” then I stopped myself. I had to brace myself. Grip the edge of the kitchen counter to keep from doing what I wanted to do.. what my body was trying to do. crumble […]
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