You know that feeling when you have on pants that are too tight.. (really I want to say bra but trying to make this applicable to the handful of guys that might read this) .. How at first its just a little uncomfortable… Maybe you yank on them to unsuccessfully try to loosen them.. Or […]
Why the focus on basic research? We’re sometimes asked why Unravel tends to fund studies that are done entirely in the lab, rather than directly with kids. The quick answer is that basic lab work is necessary to develop the new drugs, devices, and other treatments that will be tested on patients to see if […]
*ahem putting on my unravel Libby hat * I was honored to get to be part of an amazing and inspiring conference. It was host by PBTF (pediatric brain tumor foundation). I was in the company of around 10 motivated foundation founders and 71 brain tumor researchers. It was humbling to say the least, […]
final blog continued from this entry.. I love you. I screw up with you guys. I know that. I have all these plans and thoughts in my heads of how I am going to do and be so much better. And I screw it up. Lately its been because I have been scared. Its hard […]
..continued from this blog.. which is continued from this one. I love you. I miss you. Its hard to feel both of those things. I’m sorry. I’m sorry I’m not always strong enough to do that. Do you know how sorry I am? I have so much I would have done differently for you at […]
I say the words that I know I will always grieve her.. but lately.. really this whole past year I’ve just been mad about all of it.. And fighting like hell to deny it all too.. Been doing fairly well at it.. And had a distorted sense of pride about it .. But not sure […]
A common saying I had no idea where it came from .. but its been chasing itself around my head the last few days.. So I had to find out .. according to wiktionary Etymology : A common experience of tenement living in apartment-style housing in New York City, and other large cities, during the manufacturing […]
You ever been in the water.. and you start to get tired and your stroke gets slower and you sink a little deeper .. or like when you are in the current and you stop fighting it and let it pull you … That’s what grief is like I think.. Sometimes its too strong and […]
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