Read personal stories from our founder and Jennifer's mommy, Libby, along with other Warrior Moms and news from our Unravel team.

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our bed.

July 1, 2015

Her bed. Well it was really our bed. Me and her. We shared some horribly beautiful nights in that bed.

At first we borrowed a futon. But a death bed for your six year old isn’t the kind of thing you borrow.

We needed a new one. Comfortable enough for her to die in.. big enough for us both to sleep in. How do you pick something like that out? Luckily some friends of our did it for us. They bought it and dropped it off for us. No questions.. just something  they could do to help.. to lessen a burden.

Sometimes I hear that ariel toy playing. and I know where they are sitting and I top myself from running in and moving them off your side.

Sometimes I hear that ariel toy playing. and I know where they are sitting and I have to stop myself from running in and moving them off your side.

I rarely lay in it. It’s so hauntingly empty. But I sit on it. I look at it every morning and every night. Never changed in those hours.. How often I reminded her to make her bed.. Oh how I long to see it messy with her arms and feet hanging out of it. But it never is.. and its still a sobering reminder every day. But one I need. One that centers me and connects me ..

Pink princess comforter. I run my hands over Belle.. she reminds me the most of my Jennifer.

i can't believe i didnt save either of you.

i can’t believe i didnt save either of you.

Tony and I have very different feelings about it. For him its the bed his daughter died in. The place where she was stolen from us. That she slowly suffered.. and took her final breath. The place he ran to as I screamed. ..

Screamed from my soul.. as part of my heart was forever broken.

He is like that for her whole room. He rarely goes in it. I know he braces himself for the full body impact every time he does. That knocks into him with a unseen and powerful force.  Sorrow.

But for me it’s different. It’s sacred. I love her room, when I really need to connect to her to write.. I go there. When I am struggling with a speech I go there and I feel like the words come more easily. I love life being in there. Having the kids play with her things. . Imagining how she would react to see them all dressed up in her jewelry.

It’s a place I touched God .. the place where we lived a lifetime in less than 3 weeks. And the bed.. her bed.. our bed.. is the epicenter of that. Where I held her.. and slept with her. Where I gave her medicine to try to ease her suffering, sometimes inflicting more on her. Not pleasant. But deep, visceral memories. Of her life. Of her death. I guess its of mine too ..



She aged and so did I … many many years in that bed. We communicated often without words.. So much. A communication I would have never believed possible if I hadn’t lived it. The bed that I ushered her over.. and let her go. To be safe and pain free. The thing I could not provide her with.

It’s the place I laid and immediately pleaded and begged for her to come back. ..

Her room is special to me. But that bed. That bed is sacred to me.

But not to my husband. And we both matter. And a new baby is due to arrive in 7 weeks.

So we are going to wrap it up and store it away. But the thought of not having it here.. it knocks the wind out of me. ..

The plan has always been to move Charlotte into Jennifer’s room.. to leave Jennifer’s toys and probably her dresses in the closet for now. But empty her drawers. And move her dresser to our room. To put up shelves to keep many of her things in it. .. but not her bed. Tony can’t handle any of our other children sleeping on that bed. I understand how he feels.. but .. I don’t know.. Its just hard for me.

Normally Tony would do all of that. When the girls and I were moving back home Jennifer had requested getting her own room.. Moving her out from Jonathan and moving Nicholas in, putting the brothers together.


sometimes sharing a room wasn't close enough for them.

sometimes sharing a room wasn’t close enough for them.

you knew it would be so much sooner than we imagined huh sissy?

you were just protecting him

always his very best friend.

always his very best friend.

So Tony did it all before we even got home. I don’t deal well with change and I have no sense of where things should go in a room.. he is great at that. So he just does it. But not this time. This time is me. Because we both know he can’t.. and that I need to. But I am frozen.

I finally went out to buy the bins to put her clothes. .. I guess thats a step . Her forever clothes. Ones that will never be worn again. At least right now Tony and I can’t imagine having Charlotte in any of those clothes .

Her size 5 and 6 clothes.. Those are Jennifer’s. And mine. And Tony’s.

 I had imagined what it would be like when they went to college or got married. and I had their rooms. How hard that would be. How I would try to decide how much to keep the same and how much to change. How empty this house would feel ..

This isn’t normal. It wasn’t supposed to be like this.

I missed all the years of life in between. She is only 6. DO YOU HEAR ME??

She is only 6 … please please please. 6 damn it. Just barely 6 years old. Damn you.


I wasn’t ready. I’m not ready and I don’t think I ever will be.

i’m sorry jennifer

i am so sorry baby girl.

bed4…until there is a cure..

  1. Sherri says:

    Oh, Libby. My heart just breaks for you and your family. Thank you for sharing your beautiful Jennifer with us and the journey you have been on.

  2. Janeel says:

    Heartbreaking and beautiful at the same time! Praying strength for you! Love4JLK!!!

  3. Linda says:

    So sorry

  4. Kristina says:

    My heart just breaks for you, Libby. I wish I could be there to help you. Just hold your hand or help you carry some totes out of Jennifers room. How weird it would be for you having a virtual stranger in your home helping you sift through your most intimate and important things; but from this side it would feel like helping a friend. You’ve gained a lot of friends during your loss, friends you never wanted; but none the less we are here for you. Holding you up, crying with you, and trying our best to change the future for children with cancer…and their families.

    Sending you love and light while you go through Jennifer’s room.

  5. Alice says:

    It’s so unfair…the struggle you all live every single day… There are some things in life we will never ever understand and certainly this is one of them. But, one thing I do know for sure is that you are far stronger than you realize or feel right now and that you are not alone. We love you all and are praying for you every single day – for strength, peace, healing and comfort <3

  6. jennifer says:

    This post is truly heartbreaking and no family should have to go through this. I will flutter and donate in the hopes of saving another family from having to endure such pain and loss. LOVE4JLK always

  7. Sherry says:

    Hauntingly beautiful. For us, it was a chair. And our Ashleigh was 8 years old. My heart breaks with you.

  8. Jill says:

    Hugs. And prayers.

  9. Julie says:

    I started reading your blog about Jennifer shortly after my daughter was born in October 2013. I’ve been reading and crying for you and your family since then and this post is no different. I see Jennifer in my daughter and 4 year old son. It’s just so unfair. I don’t have words as beautiful as yours but I’m still here, remembering your beautiful Jennifer.

  10. Leah says:

    Sending love.

  11. […] I was able to come to a middle ground on that by calling it Jennifer and Charlottes room. .. it was her bed. He was just so strong in not wanting us to move it from the […]

  12. doris says:

    it is so difficult to hear the pain. I hope us listening and trying our best to hug virtually helps a bit.

  13. Erika M says:

    This one hits so hard. A child’s room is so much part of them, their growing personality and character…I feel those emotions and get only a tiny glimpse of what it would feel like to make decisions about Jennifer’s belongings. My heart is with you and your family, always.

  14. Lisa Jack says:

    Many prayers for an easier transition. What an unfair situation. Constant prayers for a change, a cure.

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