I have so much to do right now for Unravel. I am trying to get a few of my blogs selected in different contests.. a way to reach a new audience. We are trying to get a informational video ready and a new brochure and 2 MNOs and so many other things I should be working on.
Including our Facebook page. But instead when I opened up FB to go to our page I first noticed there was post by my friend Heather. .. a link to her blog post about recent photo session she had done. You can look here.. I encourage you to look. Fall in love with this family the way I have. And then get so angry. Because it doesn’t have to happen.
I look at this mom. Who is now one of my close friends and my heart breaks. Because I know the ache she is carrying.. the mix of hope and anguish all rolled into one. I look at this Dad. I see the burden he carries.. the impossible weight on his shoulders to try to support his family financially and emotionally while being confronted with his worst fear. And little Wyatt. Innocent and loving. With just the perfect hint of mischief in his bright eyes.
But then I see the little girl. A big sister my Jonathan’s age.. with the heart of my Jennifer. I want to save them all… but her, this little girl most of all. A sister and a daughter forced on this path of cruel turns and jagged edges. I wish I could fix this for you Lillian.
I wanted so hard.. so much for Jennifer to be the first to survive this thing. There has to be a first and more than I have ever wanted anything in my life I wanted for her to be the first. I shared that wish with Wyatt the moment I first met him in May at a 5k.
I can’t even explain how much I long for that day. To know we have really made a difference .. to know that lives are being saved. Lives of the kids with cancer.. and their whole damned families. For that day I don’t have to see pictures of families and know the feelings and expressions on their faces.
Working on the brochure my mom edited a line to say that the researchers have the ideas.. and they have Jennifers tumor.. now they just need the funding. And I think it really hit home with me. I look up now as I write at her perfect smile and white headband for her kindergarten picture .. and I want that change to come. I look at the keepsake with a little of her ashes inside it right in front of those bright sparkling brown eyes.. and I want her not to just be dead and gone.. I want her to be making a difference. I want her tumor cells to be part of saving other kids. Because Jennifer would want that. She never liked to see people hurting.
My proudest moment of her life was one I found out about after she was already gone .. I wrote about it here. .The way she reached out to somebody in need not for any accolades but because it was the right thing to do. I know its what she would want to still be doing.. I know that’s the part of her still living in those horrible cancer cells.. its that part of her that loved the feeling of helping other kids.
And because of that.. because of Jennifer and because of Wyatt we are adding in just one more component to Unravel. That every event we host we will find a family to support. It has always been a piece of the Mamas Night Out recipe but now it will be a part of all of our events. Like the upcoming race and our Team Glitter.. I want to help support the science that will find the cure.. but it also feels really good to do something for families in the midst of it all.
This addition has been in the works for a few days but the board vote made it official. And to end my night looking at pictures of this sweet little boy and his family.. and looking up at her picture on the mantel seems about right.
Every family we help as Unravel.. Wyatt will be part of it because he is the one that made me remember to honor part of what made Jennifer so incredible.
Deep and pure.
…until there is a cure..