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but Jennifer died..

I am struggling to find the balance. I write and I miss Jennifer so terribly.. I look through pictures to add them to my words. And I see how quickly and special my time with her was.. And I realize how quickly this time is passing me with my surviving kids.. but Jennifer died. Cancer stole her. It destroyed my family. And I know I have the ability to make a difference… The altruistic part of #forTHEMbecauseofher.   But I see pictures like this. . And I realize Charlotte has already outgrown putting her shoes on the wrong feet .. Time is passing. And I miss it. Because of work. Work I never wanted. Work I never planned on doing. I miss it. I miss them. but Jennifer died. Cancer stole her. It destroyed my family. And I know I have the ability to make a difference… So how do[…]

the 3rd 12th

Its almost here.. That invisible yet powerful clock has almost come full circle.. .to mark off yet another year without the girl that made me a mommy. i thought that was it. i thought the brutal road to being your mommy meant i paid my dues. ..   Sunday will mark 3 years.. 3 years since she I last touched my Jennifer’s warm skin. .. last heard her jagged and raspy breathing. I was so scared she wouldn’t let me be there .. be awake when she died. 3 years ago I was asking myself unanswerable questions.. ones I still am asking today.. That day .. those worries I wrote about then.. I was right. It is EXACTLY how I feel today. .. She let me though.. She gave me so many gifts those final hours. Through her suffering she remained the girl she had always been.. Kind. Giving. Generous. Trusting.[…]

my friend Grief

Its February. Its here. This month that fills me with such dread.. Its here. And with her she brings my old friend.. Grief. True. Utter. Grief. Grief that hollows me out. This friend.  The one I can’t remember not knowing, yet somewhere along the line, I was able to put in some separation.. Able to call on her .. versus her calling on me.. With this month that friend is back. Holding my hands .. matching my every step. I feel like I am being slowly pushed towards an invisible line and everything in me is fighting against it.. I’m losing though. . Ive always lost to February. I find myself constantly crying. Every time I get in the car .. Even those times my mind feels blank or preoccupied .. the moment the door closes I feel that familiar prick and sting in my eyes.. Grief. She grabs my[…]

3 years… almost..

Almost 3 years. I said those words aloud to another DIPG parent last week, a Dad just starting out on their journey.. and I haven’t been able to shake it. .. 3 years. Its been almost 3 years since I last held my daughter. Since I last smoothed the hair from her face.. And whispered in ears.. Almost 3 years since I felt her slight weight in my arms… I wonder. So much I wonder if I helped her. If I said the right things to her.. I wonder if she felt safe.. if she was angry? Was she scared? were you scared baby? I don’t know how to not let the slow onslaught of questions overtake me.  I am trying. I am really trying to stay above.. but the waters are rising. . A slow and constant pounding … a steady and growing swell of grief is swirling around[…]

changes.. years and reactions..

She should be 9… I am a mother to 4 beautiful, blonde haired, blue eyed living children. They attract attention. .. and are the catalyst for conversations. I often get asked if they are all mine.. or hear comments that my hands are full. If it ends there I will leave it.. but often the conversation continues and I mention we have 5.. or I just get asked their ages. . I share my truth. Our truth. Her truth. That she lived. And she died. The shock.. they look like they just got slapped. I think maybe part of me has liked that. .. Because that momentary stun that they can’t physically hide is my day to day.. my constant. .. i don’t think it will ever change.. i don’t think i will ever be used to you being gone..  Forever 6. She passed away 2 months ago. .. He is 4, and he is[…]

I am

I am out of control. Watching Jennifer struggle. Witnessing her slow and painful death.. I learned I have no control… And now.. I constantly feel like I am being battered by wave after wave of emotions. I wish I could control my mind better… I wish I could control the triggers.. know when they are coming. ..But mostly I wish I could contain them better like I used to.. It seems like its getting worse now in that aspect. That when I used to carve out time daily to write I could control the anguish better and keep it locked up until I was ready to take it out and examine it behind this keyboard.. But it seems along with the growth I have talked about recently is this new thing. .. my loss of control over the triggers.. And the way I am reacting to them. I have found[…]

this christmas

We made it through the holidays.. It wasn’t pretty a lot of the time.. But really thats not my goal anymore. Its just to make it through. To celebrate the joys.. and be ok with the sads. To say good riddance to the passing of a year without her and try to not dread the start of year another year without her.. Christmas was just a crap day. One where everything seemed to just go wrong. … From toys breaking.. to meals not cooking right.. Tony even had to go into work. The culmination of the day was the kicker..  I turned the corner from our kitchen to the hallway to be greeted by water. Charlotte had stuffed too much toilet paper and for 20 mins it kept flushing.. But maybe that was a good thing.. Because we all banded together to clean it up.. and keep little hands from[…]

lessons from above

It’s always amazing to me.. how things seem to happen. I desperately want to meet her again in my dreams.. so much so that I think I miss the ways I can see her in my day to day.. Especially right now. I just miss her so much that everything hurts. And to exist.. especially around other people takes a lot of work. So I avoid it. But I worry it will push everyone away. .. So then I move through it and go to social occasions… I find my humor becomes very dry.. And I worry .. will I push everyone away? So really the fear is that my struggles will leave my whole family alone. And its overwhelming. I am overwhelmed. Today was a wake up and cry in the shower kinda day.. Covering my mouth trying to stifle the sobs that are racking my body.. hoping the[…]

live again

I set up a get together with other local bereaved moms.. It was a great experience for me and I hope for them also. I was there with a table full of woman who all wish we didn’t have a seat.. We came to the table for different reasons.. sons and daughters.. cancer and accidents and a multitude of other medical causes .. we all took our seats at this table at different times. I took my seat more recently than some.. but earlier than others. So I feel like I had a unique view.. one of what the future may hold.. and one of what my past did. And I realized I have been … well there really is no word for it.. Just like there is no word for a parent that has lost a child I think there is no word for a parent that is ..[…]

giving tuesday

Our country has been in such turmoil since the recent elections. Emotions are running high and strong. . Marching in the street to protest or to celebrate. Liberal or Conservative, Clinton or Trump.. The overarching thing I see is that people care. People are invested and they are hopeful. People are scared, they are worried for themselves and their communities.. I get it. In a different kind of way. I get it. I think thats kinda my life all the time now too.. I have moments of great hope. When I see success when I see change is coming and happening. I have moments of great fear. Worried for childhood cancer to take up residence in my home again.. Fear that all this effort will never make a difference. Heartbroken over the everyday loss of life. 100 – 140. That’s how many parents have kissed their child for the last time[…]

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