Uncategorized Archives - Unravel Pediatric CancerUnravel Pediatric Cancer

muscle memory

February 8, 2018February 8, 2018Unravel Pediatric Cancergrowing up in grief, latest post, sibling loss, Uncategorized3 years after losing a child, 3 years child loss, 6 year old sibling loss, 8 year old sibling loss, bay area childhood cancer, child loss, childhood cancer death, explaining death to children, grieving with children, parenting after child loss, parenting in grief, parenting through grief, sibling loss8 Comments

They call it muscle memory.. mus·cle mem·o·ry noun 1. the ability to reproduce a particular movement without conscious thought, acquired as a result of frequent repetition of that movement. Yup. Both boys are struggling. Jonathan started first. His teacher came out and spoke to me after school.. He was getting in trouble at home.. Nothing major just acting out. .. and needy. Nothing seems to be enough for him. My first thought was Jennifer.. Because I knew the time was coming. .. But I do not ever want to force grief upon them.. or excuse poor behavior because their sister died. So we looked.. we tried to find other reasons.. and actually thought we had.. ..but the behavior continued. Then Nicholas’ teacher asked to speak with me.. Worried about him. He was pulling inward.. not acting like himself.. oh sweet boy Still. I didn’t want to immediately think it was[…]

old life back

June 12, 2016Unravel Pediatric Cancergrieving after 2 years, growing up in grief, latest post, Uncategorized, Unravel4 year old grief, 6 year old grief, anger over sibling loss, for them because of her, no into yes, old life back, running a non profit, sibling loss, starting a foundation after child loss, struggling after child loss, yearbook6 Comments

*I wrote this last week and didn’t realize I hadn’t published it* There is a undercurrent in our family right now. I am not sure what is causing it. I didn’t even realize it until I sat down to write my most recent blog.. The only thing I know for sure is its all different manifestations of a yearning for Jennifer.. Tony has been short with me lately. Impatient and grumpy with me. I wasn’t sure what I had done. We talked in the car ride to the airport. About a lot of things.. his things and then about how he worries that I am not going to the gym anymore, just working out at home. He has noticed I am sheltering in the house again. .. retreating inward emotionally and physically. He’s right. My only social life now is Unravel related. Up before the kids to work out alone.[…]

Guest Blog: Carmen Murray

November 3, 2015Unravel Pediatric Cancerchildhood cancer, guest blog, Our Story, Uncategorizedchemo, chemotherapy, late effects, leg lengthening, NED, neuroblastoma, neuroblastoma angels, neuroblastoma survivor, no evidence of disease, replapse, surviving childhood cancer, surviving pediatric cancer4 Comments

October was about Jennifer. Thank you for that. It was this mothers hope that my daughter could motivate and inspire .. “forTHEMbecauseofher” but I have so many more children that make up my “her” The kids that motivate and inspire me to fight for a cure. Kids that make me want to be a better mom in every way.. This month we are honored to introduce you (both through blogs and social media) to just a few of these children. Allow me to introduce Carmen and Ty. Carmen is one of our board members and a woman I am proud to call my friend and Ty…. Ty is simply incredible. “But your son is all better now….. because he doesn’t have cancer anymore right?” I can’t tell you how many times I have heard this phrase or something similar to it after people find out about my son’s battle with cancer. While I totally understand why someone[…]

back home

November 2, 2015Unravel Pediatric Cancerchildhood cancer, DIPG, for them because of her, growing up in grief, sibling loss, Uncategorized4 year old grief, child loss heaven, children fundraising, donate your birthday, heaven, kids saving kids, loss of innocence, nicholas struggles, parenting through grief, sibling loss10 Comments

Children are resilient. But they are also vulnerable and trusting. They believe. They hope. They try to make things right. Jennifer always did. She fought. She hoped. She trusted. Children are supposed to be innocent. I stole my 4 year olds innocence. .. Another piece of it at least.. I had to rip more of it away from him. I get told not to put my grief on them. To not misplace my feelings as theirs. They are so young they won’t remember. They barely knew her .. or never knew her. That my kids are innocent. But they aren’t. Cancer. Her death. Lack of funding. It stole their innocence. Charlotte was only 9 months .. and Bridgette wasn’t even born yet. .. The boys decided to donate their birthdays to Unravel. Instead of presents from friends they asked for donations they could make to save other kids. One thing[…]

october 1

October 1, 2015Unravel Pediatric Cancerchild loss, child loss birthdays, childhood cancer, DIPG, holidays, jennifers birthday, signs, Uncategorized, Unravel12th, 8th birthday, birthday of dead child, child loss, child loss holidays, childhood cancer, diagnosis, DIPG, grieving child loss, holidays after child loss, year 2 after child loss10 Comments

The start of Oct. I am excited only for one part of it. The end of most of the Fluttering campaign. I LOVE this campaign. For so many reasons. It raises a ton of awareness and money. Kids are involved and doing it. Kids are saving kids. We partnered with other organizations and allowed people to highlight the child(ren) that have touched their lives. I am proud of it because I think it really showcases what and who Unravel is.. Awareness. Empowerment. Kids. Money for research. But I miss her. Jennifer feels so distant to me this month. I think I know why. I see messages and notes of people every single day who she is touching and inspiring to keep going with Fluttering. But I’m selfish.. I miss her. I miss the signs for me. I miss that sometimes that I feel like she is just about to come[…]

is versus was

August 10, 2015August 10, 2015Unravel Pediatric Cancerburying a child, child loss, childhood cancer, DIPG, embryo dontation, Uncategorizedadoption, losing a child that was adoption19 Comments

Early on when I started this blog I had a lot of people wanting to know about the story of Jennifer coming to make us a family. I never really answered because it was the most insignificant part of our story.. I missed out on an additional 9 months with my Jennifer. I have always missed that time.. . But also known how much it just doesn’t matter. Biology doesn’t make a family. Tony is my family. My rock. My husband. The first of the 6 true loves of my life. And we are most certainly not related by blood. I do not love Jonathan or Nicholas or Charlotte because I was lucky enough to be pregnant with them.. or because we are tied by genetics.. It’s our love that binds us… because when they draw on the wall with sharpie its not a genetic thing that saves them.. its[…]

lifes a beach

July 30, 2015Unravel Pediatric Cancerchild loss, childhood cancer, DIPG, for them because of her, Uncategorizedbeach vacation, cousins, for them because of her7 Comments

Jennifer was a water baby from the very beginning. She always loved the beach and just being in and near the water. I always feel closer to her again being near the ocean. .. We got back today from a few days at a rented beach house with my sisters family and my mom. Tony was able to come for one night but had to leave for work… I know I am so lucky to have him! We had a great time.. even better than I was expecting. Our kids were truly so very well behaved and played together and with cousins the whole time. I forgot my camera but had my cell phone so snapped pics as often as I could. .. I want them to remember this trip because I think it was a really special time for them to be with their big cousins and to[…]

jennifer lynn kranz

June 25, 2015Unravel Pediatric Cancerafter death, all posts, child loss, childhood cancer, DIPG, UncategorizedJennifer, memories, pictures12 Comments

I am so grateful for pictures. I feel like without them I am losing her. Like she becomes a figment of my imagination. A almost mythical creature that I make up who she is. But then I get lost in pictures and I remember. .. Her. Jennifer. My daughter. I have worried since the day she died I wouldn’t ever remember her healthy. I still struggle with that .. a lot. But now I worry I will forget her. The real her. That she will become just a memory to me.. A twisted incorrect version of who she really was. That’s horrible. Its something I never want to admit to myself let alone out loud. But its the truth. It is a fear of mine that makes me feel like a terrible mom to her.. Which is strange because in so many ways her memory right now consumes me.. Even[…]

cancer survivor day

June 11, 2015Unravel Pediatric Canceranger, burying a child, child loss, childhood cancer, DIPG, for them because of her, growing up in grief, Our Story, sibling loss, Uncategorizedcancer survival day, childhood cancer survivor, he is a survivor9 Comments

Cancer survival day. 2 years ago I didn’t even know something like this existed.. and if I did it was simply a blip in my day. Not a grinding and scratching reminder of what Jennifer is not. I thought it would just be one day staring me in the face. I was wrong. There is build up.. Its truly a wonderful thing to celebrate. .. I am just so horribly jealous that I can’t be part of it. I’m long over lamenting being part of the cancer community as a whole, I have met some of the greatest people in my life through it.. But I hate that I am, that we are, the losers. A tumor in just a slightly different place in her brain.. it could have been the difference between life and death. . It certainly would have been at least a chance. With my 6 yr[…]

Let’s play family

June 9, 2015June 9, 2015Unravel Pediatric Cancerchild loss, child loss birthdays, childhood cancer, DIPG, growing up in grief, Uncategorized36th birthday, family, my birthday6 Comments

Its all of us.. in different ways. Last night it was just me I was worried about and feeling sorry for .. just me alone in missing her I thought. You would think by now I would know better.. On their birthday cards to me .. both boys had Tony write about forever. Me loving them forever or being with them forever. As I read the word aloud I looked at them… as their bright blue eyes pored into me.. I could see them questioning and needing me so much in their moments. Its so hard to know… to predict how things will hit them. But it does. Both already know that sometimes those we love leave us. And they are scared I will leave them too. BC (before cancer) I would have held them and said I would never leave them.. I think I would have meant it.. But[…]

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