Tag: unravel

but Jennifer died..

I am struggling to find the balance. I write and I miss Jennifer so terribly.. I look through pictures to add them to my words. And I see how quickly and special my time with her was.. And I realize how quickly this time is passing me with my surviving kids.. but Jennifer died. Cancer stole her. It destroyed my family. And I know I have the ability to make a difference… The altruistic part of #forTHEMbecauseofher.   But I see pictures like this. . And I realize Charlotte has already outgrown putting her shoes on the wrong feet .. Time is passing. And I miss it. Because of work. Work I never wanted. Work I never planned on doing. I miss it. I miss them. but Jennifer died. Cancer stole her. It destroyed my family. And I know I have the ability to make a difference… So how do[…]

flawed but whole

I have these positive posts planned. These things I want to write about laid out in my head and I get excited for it. Excited to explore different avenues of myself and my thoughts and my heart in the way that blogging allows me to. But.. my body seems to know. I write a lot now on Thursdays. My Mom watches 3 of the bigger kids .. will it be like that for the rest of my life.. will I forever stumble over how to refer to my kids. 3 bigger,  the kids,  the girls,  .. its a constant and subtle stab.. one is missing one is missing.. So my parents have them on Thursdays. Its my work day. I try to fill the day with all things Unravel.. and at night we go to counseling. Somewhere along the line I started writing while Bridgette slept. And now its part of[…]

relapsed

I want to help. I want to change. I want to heal. I am selfish most of the time. Most of the time I hurt just for me. For us. For our loss. For our pain. ..but Unravel. We didn’t name it after Jennifer. We didn’t make it specifically a DIPG or even brain tumor research foundation. (although we certainly fund it) I have always known why. Always known it was because its bigger and more than just her. But today sitting outside of Starbucks is when my heart absorbed the reason. His name is Juan David. Just two and a half. Infant ALL. .. oh well ALL thats a “good one” right? Thats a easy one right? Well as sweet Elayna taught us there is no such thing as easy or good. The treatments are always brutal.. And infant ALL.. is actually not good. The percentages aren’t in their[…]

NYC

Life moves so quickly sometimes. I thought while I was in New York I would carve out time to blog, but we were so busy I didn’t. And then coming home I have just been trying to get the house stuff and kids in order. So for those that don’t follow on Facebook (and if you don’t you should!) Tony, Bridgette and I went to New York to give money to a few labs as well as meet with additional ones we are considering funding and a few other East Coast foundations. I went through a lot of surprising emotions on the trip.. Just even being there was bittersweet. Its always been a dream of mine to visit New York. But we chose to have me be a stay at home mom and figured there would be no reason to travel that way for a long time. Then Jennifer got[…]

gray

Definition of gray a. of the color gray b. tending toward gray c. dull in color having the hair gray clothed in gray a. lacking cheer or brightness in mood, outlook, style, or flavor; also: dismal, gloomy<a gray day> b. prosaically ordinary: dull, uninteresting having an intermediate and often vaguely defined position, condition, or character     I am gray. I live and survive in the gray now.. This is the merriam-webster definition of gray.. and I think it suits me.. This new AD me that I discovered in this post.. Parenting after child loss is a bitch. All parenting is hard. All parents question themselves.. I always have. But now the stakes seem so impossibly high. That if I am wrong I can be doing some real damage to their little hearts. Nicholas is hard lately. Really really hard. Angry. Defiant. Stubborn. .. and hurting. Maybe more than the rest of us right now. Is[…]

Seattle in pictures

  Seattle was great! So many memories made.. and difference to be made. We gave over 130,000 into the hands of some incredible and dedicated researchers. Thank you! I didn’t tell Jonathan until the night before our trip that we were going somewhere and he didn’t know it was on a plane until we got to the airport. Then I told him every single step before we did it. That seemed to be the perfect rhythm for him. We were on seriously the smallest plane I have ever been on. My 5 ft tall self could easily put my bag in the overhead compartment. I am not a good flier so that didn’t help!! The last time Jonathan was on a plane was our Make A Wish trip. On the flight we talked about those memories… Bridgette was perfect! Until we got to the hotel. Then she freaked. Jonathan got[…]

train is coming

Her birthday is coming. Like a fucking train. I am staring at a train, barreling right for us and I cannot get us out of the way. I want so desperately to make it a celebration for her .. for them too.. But I don’t know how. I am crippled from the pain right now. I feel like a failure. I couldn’t keep her alive. And I can’t feel joy in the blessing of 6 years with her. All I can see right now is the nearly 1 year 8 months I have endured without her. Dear God… That’s a long time. no. no. no. It can’t be real. I think maybe this all started in counseling.. When Tony said something had been changed for 5 years.. And my immediate thought was no. No. Maybe 1.5-2 yrs at most. But instead I just started crying. Because he was right. Because[…]

i heard

I often talk about the good parts of me that Jennifer missed out on. The ways I have changed to be a better parent that she so deserved. . I have talked how my surviving kids have a different mommy. One that cries.. not everyday anymore.. but at times when a mommy isn’t supposed to be crying. Holidays. Birthdays. Celebrations. And little moments.. too. Walking into Costco and seeing a costume I think she would have loved.. well at 6 she would have loved. I have no idea what a nearly 8 year old girl would have picked out. .. I am busy now.. work from home.. Stopping playing to take a phone call. Away overnight to get to share our story.. I knew all of that. But somethings I didn’t know. Nicholas wants to watch a lot of Jennifer videos lately. And the other day I heard it. My[…]

the heart of it

You ever look back and wonder.. wonder if on some level you knew your whole life story ahead of time? There are moments since all of this I have done that. I wrote about it here .. about the signs I had seen along the way. Now too. How I look around and Jennifer is all over our home. Not just the new things.. the things we have added since she died, but so many places before she was even sick. Much more than the other kids.. I just never noticed it. But it makes it easier for me now. I like to make memories with her in the background. Every conversation I have.. Every new memory I make she is there.. in some way I there is a visual presence of her there. And my all time favorite Christmas song. It has always made me pause. Made me stop.[…]

matters

Sometimes I am so incredibly humbled by this community. Leaving our house this morning we all get buckled in then look up at our front door and noticed. WE GOT FLITTERED! It was so exciting for us to see all of the Unravel paper dragonflies flittering around our front door. Loving and protecting our home. We all got unbuckled to look closely.. and of course for Mom to take some pictures!   This evening we went to 7652 Monterey street here in town.  Its actually a local church.. and I got to shake the pastors hand. A place that opened their doors with their new flooring and freshly painted walls to us for our rummage sale fundraiser. So just driving there I was touched by their generosity in action to allow us to use their facilities without asking for anything in return. When I talked to my boys about it driving there,[…]