Tonight I should be practicing for a speech I am giving tomorrow. I have only gone through it twice now.. But I can’t seem to do it. Im not sure why. If its something swirling inside of me.. waiting for me to write and get it out.. Or if its too hard to do. Too […]
A friend of mine encouraged me .. strongly.. to go to a blogging conference. Who even knew things like that existed! It really helped me to clarify my focus and my goals. I want to speak her name. Hear others speak her name and galvanize efforts to save kids from toxic treatments and parents from […]
We got the mission statement completed. I should feel happy. I should feel relieved. One thing off my plate. .. But all I can think is 20 weeks. Tomorrow is 20 weeks. .. I have never been so sad. I never knew sadness could permeate to these depths of a person without destroying them. I […]
Looking through the pictures for that last post really got to me.. About what pediatric cancer really looks like.. Its not just bald kids.. or swollen faces. Or feeding tubes and barf bags.. Often times there is something even worse that all of that.. being left behind. And […]
I woke up feeling like I was hit by a truck… weighted down and sluggish. Shoulda just stopped there.. but I didn’t..I went for a run. It was a crappy run.Oh and full disclosure since I hope to see so many of you at the 5k in May…I use the term run very loosely.. its […]
This grief. Its so different than I thought it would be. Its so different than any other grief I have ever experienced. One where the color can break through. . . This time it doesn’t. .. I have my doubt that it ever truly will. Tony and I talked about this on our trip. How […]
***Write down the time. Seriously right now look at the clock and write it down. **** This blog is my lifeline. My connection to her. Its been a wonderful way to keep her alive for me. At night I pour over videos ABCs and pictures of her. Getting to re-live our lives with her over and […]
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