Category: vacation

Okizu again

Camp Okizu. What a gift this place is to families impacted by pediatric cancer. . From the child themselves to the parents to the siblings.. something individual and special for each and everyone. As soon as I got back from Seattle it was time to jump ion the car and drive to our family bereavement camp. The kids were great on the drive and Tony and I did a great job working together to prep for it. I get lost walking from my kitchen to the bathroom .. I have no sense of direction. But I remembered so much of this drive. We made it a year ago. So quickly after she died. On the drive this time I felt so much older, so much more seasoned in the world of child loss. Just a year.. Its still feels so new.. Yet it is engrained in me, a complete piece[…]

Sacramento

I rarely share photos of the signs we get.. but wanted to share the one above. It was the night before her birthday. A night Tony and I should have been planning ways to show her our love for her.. Instead she sent us her love.. some from Mommy and some for Daddy. Our birthday trip minus the birthday girl. She was born in Sacramento. It is a great town with so much to do for our aged kids. We missed her.. terribly.. but we made memories with our living babies while we grieved the one missing. Forever you will be missed. …until there is a cure…

Happy birthday

Happy birthday. That used to be a simple innocuous saying.. now such a loaded statement. I don’t know what to say.. A year ago I was just a mom.. then a little after noon I became a mom to child with a terminal brain tumor. Jennifer   We should be blowing up balloons. We should be telling her to stay in her room so she doesn’t ruin her surprises. Her brothers should be getting the chance to decorate for her.   Instead we are in a hotel.. running hard and fast from the truth that haunts us. Tomorrow she is truly and completely forever 6. Because when you don’t turn 7 what else is there? Happy forever 6th birthday buggers She should be blowing out 7 candles..opening presents.. and feeling extra special for the day. We should be getting to show her our love in lots of little ways. Instead we[…]

one day

We had a wonderful anniversary trip. We walked and spent time together.. and we struggled and we fought as we tried to figure out how to navigate missing the same 6 year old girl in such vastly different ways. I need to talk about her. About all the memories and the moments. Tony needs to escape it more often then not. He looked at this weekend as a time to get some respite from our grief.. A chance to be husband and wife for 48 hours. I looked at it as a time to grieve together.. uninterrupted.. A chance to be mommy and daddy to a girl in heaven. We were both right in what the trip should have been.. The thing is we both failed to share our expectations with each other.. both assuming the other had the same mindset. It all came out over dinner on Saturday ..[…]

camping

Sometimes the empty is so consuming, sometimes the reality that she is gone slaps me. Sometimes my ache for her is more subtle.. and another persons wound more crucial to attend to. This weekend was a bit of both. We went camping… without her… well without all of her. I had the keepsake of her remains with me. We stayed at the same place with the same people we went with last year. Because it was supposed to be a yearly tradtion.. it mattered a lot to Jennifer then and now to Tony. We really believed we would get one more trip in.. I was 8 months pregnant then, we almost didn’t go because of that, figured we could go this year. I am so thankful we went since so much changed in such a short amount of time. As we were checking in we got a flier for a[…]

Tahoe in pictures

We had a good trip. I think in part because I did so much hard grieving before we left. The 3 days leading up to the trip were pretty miserable for me … and in turn my kids and husband. My family drives my bonkers sometimes. I get my feelings hurt.. and I am sure I hurt feelings in return.But my biggest take away from the trip… I love my family so very much and they love me.. my husband and my babies. All 4 of them.  If we can raise my 3 living to be the kids, teens and young adults my nephews/nieces are .. well then I will consider it a job very well done. I just wish that my Jennifer could have been given the opportunity to grow with this incredible mix of people. She would have learned so much.. and I believe taught us so much.[…]

…but she is

I find myself back to a place where I have a longing for my nights to come and write. I don’t know if I am in a transitional period or if it is just a hard spot for me right now. I am brimming with emotions lately.. anger and sadness.. and a sharp desperate ache for my Jennifer. I have prayed a lot lately. Constantly talking to God, just walking out to the garage to grab a  bottle of juice I speak to Him. I ask for help.. . Sometimes its unbelievable to me. .. how I can feel so mad at Him on one hand .. yet still closer to Him than I have ever been. I know heaven is real. I know this isn’t the end.. but I just get so damned scared. And so I write … I release those fears through my fingers.. and then somehow am[…]

llama llama

Memories are all I have left.. Its what us bereaved parents cling to. but when they hit unexpectedly it can be devastating. I feel like I have been hit over and over again today, and I feel so weak. I rarely leave the house to run errands anymore. Her memory seems to haunt me everywhere I go. I actually wouldn’t mind it so much if it was just me .. I have no problem crying in public.. But it just isn’t fair for my kids. ..especially on days like today when the tears were fairly constant. Turning on the car.. I hear the song we walked her down the aisle to.. The only time we will have that privilege. Even just driving in the parking lots for the grocery stores got to me today. I still haven’t been able to go into a grocery store since she died.. Today being[…]