JLK was up before me this morning. I must say I am really enjoying sleeping with her and having her all to myself for those few hours at night. We talked before bed last night that tomorrow would be our first day of radiation. And that radiation was what all these appointments were building towards. That the drs were going to use something called radiation to shrink her tumor. When we first found out she had a brain tumor we were geared up for a fight ready for chemo and to be in this for the fight of our lives. I was ready to tell her even though she didn’t want to go to the dr or take meds she would need to in order to save her life. But then we were told the words I will never forget….incurable…It was just like people say, like being punched in the[…]
Hi Friends of JLK, Auntie has hacked the site again for Libby. She is getting Jennifer all settled in tonight so she didn’t have time to update but she wanted everyone to know that all is well and the port is in with no complications. Everything was pushed way back so they didn’t leave Packard until dinner time. But after leaving the hospital, the “girls” had a nice night out at a gluten free restaurant, where Jennifer had a small dinner. And now they are tucked in, getting ready for the first radiation treatment tomorrow.
Not even sure what I want to write tonight…but I feel a need to reach out and write something. We told the kids the plan for the week before bed. That Daddy will be going to work tomorrow, the boys will be staying here with my parents and the girls will be going to the dr, and spending the night nearby. JLK cried in Tonys arms that she didn’t want to go back. It’s hard not to cry with her in those moments. Grab her and tell her how desperately we don’t want to take her back either. But we try to just make it casual and a non-option. But it’s hard to see her scared and hurting…and not only not able to fix it but also scared and hurting for her. I am hoping living with my parents will make all of this easier on our boys. That this[…]
JLK went to school in the morning and Tony and I went to Target. I had one of those trips. All I wanted to buy was a video camera to capture her voice and her smile and her dancing and playing. We had about 20 minutes to get all the things we needed on our list. So I went to the camera section…When I got the camera and memory card I asked how long I could film, when he told me 1-1.5 hours I said I needed more storage. They didnt have any and it triggered me…but just a bit and luckily Tony walked up so I could walk away and compose myself. He bought all of our stuff and I walked to the returns. Jennifer got a Doc McStuffins singing doll for her birthday from her friend and loves it. I liked it too since I like how it[…]
I’m Jennifer’s auntie and Elizabeth asked me to get this site up and running. First of all, Tony and Libby want to express their heartfelt and deep gratitude for all of the love, prayers and well wishes that have been pouring into them from everywhere. They are overwhelmed with gratitude and amazement at all of you! However, they are currently unable to receive visitors or calls at this time. That will change but for right now, they just need to process everything that they have heard. If you need something or have some information that you think that they could use, feel free to contact me, Ann Scharrenberg Calcagno, my mother, Mary Goggin Scharrenberg or Renee Ridgeway via facebook as we are all on there. So today JLK, Charlotte and their parents met with the Tumor Board at Lucille Packard Hospital, where they were told that Jennifer has a brain[…]