Category: latest post

Dear fabulous four ..

final blog continued from this entry.. I love you. I screw up with you guys. I know that. I have all these plans and thoughts in my heads of how I am going to do and be so much better. And I screw it up. Lately its been because I have been scared. Its hard work to be sad. Its hard work to allow yourself to hurt. Big. Real Hurts. Losing your sister is my biggest hurt. And I hope so much it always is. *make smart choices I need her to always be my biggest hurt* But you will have your hurts. Big. Real hurts in your lives. So I hope you learn from me. I hope you learn what it means to be brave and strong. Its not what most people think. Its allowing pain. Its dealing with it. Its embracing it. Its learning from it. And when[…]

Dear Jennifer

..continued from this blog.. which is continued from this one. I love you. I miss you. Its hard to feel both of those things. I’m sorry. I’m sorry I’m not always strong enough to do that. Do you know how sorry I am? I have so much I would have done differently for you at that end of your little life. I’m sorry baby girl. Im sorry I was selfish. I didn’t even realize it at the time. I know you are here. Jennifer. I know it. Right now. I know you are right here with me. I can somehow know you are next to me on this couch. But I don’t know how to feel you. I don’t know how to embrace you without my arms. But I know you are here. I know you are so much wiser than me. I know you forgive me. But I don’t[…]

cancer beat me

I say the words that I know I will always grieve her.. but lately.. really this whole past year I’ve just been mad about all of it.. And fighting like hell to deny it all too.. Been doing fairly well at it.. And had a distorted sense of pride about it .. But not sure I have the fortitude to keep going like this.. Cuz see I know. I know it’s not fair to my kids to be denying my ache anymore because it starts to impact them. I am far less patient than I should be.. I am ready for them to go to bed before bedtime.. I am always squeezing to just hold it together. I swore I would never ever be like this.. I dug in.. I dug in so hard for so many nights after she died.. And it helped. It allowed me the space to[…]

waiting for the shoe to drop

A common saying I had no idea where it came from .. but its been chasing itself around my head the last few days.. So I had to find out .. according to wiktionary Etymology : A common experience of tenement living in apartment-style housing in New York City, and other large cities, during the manufacturing boom of the late 19th and early 20th centuries. Apartments were built, similar in design, with the bedrooms located directly above and underneath one another. Thus, it was normal to hear a neighbor removing their shoes in the apartment above. As one shoe made a sound hitting the floor, the expectation for the other shoe to make a similar disturbance was created. I was kinda the opposite of this. I honestly was walking around fairly confident in regards to my children there were no other shoes that could drop.. I have been more scared of[…]

rip current

rip cur·rent noun noun: rip current; plural noun: rip currents a relatively strong, narrow current flowing outward from the beach through the surf zone and presenting a hazard to swimmers. Its October.. the start of my once favorite time of year.. I love colder weather.. Our wedding anniversary.. It marks the start of the coming holidays seasons.. and its the month that I first became a Mama.. I loved this month and everything it represented. I don’t anymore.. and that fills me with immense guilt. Because I have an incredible husband.. Because I still have 4 incredible children to watch enjoy that magic that is this time of year.. and I am still a Mama of 5.. I feel like I should be getting to the point of just appreciating the time I was so lucky to have her.. Of all the wonderful memories I have with her.. But I’m not.. I[…]

atta girl Jennifer..

This blog all pertains to this interview we recently had .. please watch if you haven’t. 4 years too late for her. There is more weight to those words than any others in the entire interview for me.. Because I am human.. because I am her mom. and its all 4 years too late for her. .. 4 years too late. That’s because I am her mom.. and I struggle to not see things through those lens. But if I step back. And I remember my little girl I know also. she will wait forever she will fight forever.. Because that’s who she was.. and by donating her tumor.. By raising money to fight DIPG.. we are still letting that be who she IS. She did not lose her battle.. because she is still fighting. I often get caught up in a vicious spiral.. wondering who she would be. What[…]

Mrs Barbara Bush

  Did you know the former first lady lost her little girl? When she passed away.. (ok the day before I was the dodo that saw the one erroneous posting and shared it!) .. I was overcome with emotion. So happy for her. In such awe and also such fear. Awe for the impactful life she was able to lead after losing her daughter. For being the wife of a president and then raising one. If she could do that I can do this.. And for being brave enough to share about her daughter in the days when that was taboo.. and fear.. She lived so long. So long in such heartache. Its only been 4 years .. but its tiring.. Its a grind. The always present undercurrent of missing Jennifer.. Its seems impossibly daunting to keep this up for another 60 years.. And then the immense guilt over that..[…]

with the patience of eternity

I know I need to write.. But Im scared to. But then again Im scared not to. I find myself aching for her.. I find myself wanting to hide and just be with my kids.. (and husband) shutting out the rest of the world. I am strong. I am the second strongest person I know. I am broken. I am the most broken person I know. I am crying constantly it seems.. just a tear.. maybe two.. Then it dries up. My pain burrows deep and hides itself away.. I freeze. I sat down now to work on our speeches for upcoming Night on the Town in Sacramento.. I started to pull up pictures for Tonys presentation.. and I felt that familiar buzz… a weight on my chest.. forcing all the air out of my body. an invisible noose tightening quickly around my throat. ..  I exhale.. and its gone.[…]

the pendulum swings..

4 years. When you become a parent time becomes so flexible.. You can look at your 4 year old and feel like they are still so little.. yet be completely unable to remember life without them.. My guess is that never changes?? I think that maybe even my Mom looks at me like that.. However, I do know my grief is just like that.. I cannot believe its been 4 years.. the pain is still so raw and so fresh.. especially right now that I find myself wondering if I can really survive this for the rest of my life.. and.. I cannot believe its only been 4 years. I forget what it was like to parent a healthy.. living, breathing Jennifer. I hate that. I hate not only that its my truth but I hate giving that part of my pain life..  That part that feels like I can’t[…]

muscle memory

They call it muscle memory.. mus·cle mem·o·ry noun 1. the ability to reproduce a particular movement without conscious thought, acquired as a result of frequent repetition of that movement. Yup. Both boys are struggling. Jonathan started first. His teacher came out and spoke to me after school.. He was getting in trouble at home.. Nothing major just acting out. .. and needy. Nothing seems to be enough for him. My first thought was Jennifer.. Because I knew the time was coming. .. But I do not ever want to force grief upon them.. or excuse poor behavior because their sister died. So we looked.. we tried to find other reasons.. and actually thought we had.. ..but the behavior continued. Then Nicholas’ teacher asked to speak with me.. Worried about him. He was pulling inward.. not acting like himself.. oh sweet boy Still. I didn’t want to immediately think it was[…]