Month: December 2015

Guest Blog – Dyan Fox

***This is written by a mom new to the world of cancer.. her daughter just recently diagnosed and about to begin treatment. A few weeks ago.. she was “just a mom” and her little girl was healthy. *** What They Don’t Tell You There will be a buzzing in your ears when you hear the news. The doctors’ words will fall over the room like broken glass. You’ll hear things like ‘tumor’ and ‘cancer’ and frantically try to avoid the shards, but you’ll be hemmed in by those pale green walls. “Why can’t there be any color in this office?” you’ll want to scream. “Why can’t there be some kind of life?” Eventually, the appointment will be over and you’ll walk out into the world, having to blink at the sunlight that won’t stop shining, no matter what thoughts are roaring inside your head. You’ll look over at whoever was[…]

her Christmas gift

We woke up all with Jennifer on our hearts and minds… And as it turns out the feeling was mutual. My niece came over last night and saved Christmas for the second year in a row. She came over to wrap presents for my kids. Without her to talk with and to honestly do most of it I don’t know if it would have gotten done. It is so hard to not be wrapping for her.. So I just avoid it at all costs. As I fell asleep silent tears hit my pillow..  as I was helplessly wishing I could give her a present.. This morning the very first thing Nicholas did was ask my a question about sissy.. He was groggy, wiping sleeping from his eyes and asked if she used to wear boxers.. I was taken aback and at first said no.. but then realized she probably did[…]

dirty truth

Grinding. Heavy. Sharp. Never the words I wold have imagined myself using to describe Christmas time. Short. Sensitive. Hurting. Never the words I would have imagined my husband using to describe us this time of year. Everyday is just hard. No other way to describe it. The ache for her is palpable. The memories of our last year with her. Such a short time we knew she had cancer.. This time of year brings it all back. The family pictures we took.. . Her face swollen with steroids. . A trip to Disneyland. . Presents that barely got played with.. And now. A vast empty. How can it hurt this much? How are we supposed to survive this? I don’t want to do it all over again. But I am. We are. Day after day. Its not fair. Why my daughter? I hate this part of it. The searing and[…]

ground to outer space

I forgot. I couldn’t believe I had forgotten… Cookie and cocoa and lights. A tradition that matters. We started it Jennifer’s first Christmas. It was always a celebration of getting to be parents. A night I always remembered and appreciated how hard fought for these children of ours were.  As each year we went from 1 to 2 to 3 … 4… with our 4th child then we knew we be losing our first one.. But I loved it. One of the only things that I actually have looked forward to these 2 seasons without her.. Because I remembered so much so fondly. The way she would get so excited.. Even showing her siblings that were just sleeping babies the lights. Squealing out to everybody whose window to look out of. I needed that. That remembering of the happy noises. My boys fight. A lot. And they fight hard. It[…]

love wasn’t enough..

Christmas is almost here.  A day I counted down to and used to love. Even more after having children then I did even as a child. It was pure magic to get to experience it with them.. I’ve lost that. I’m sad. I miss my daughter. I look at her stocking and hate that I know it won’t be filled with gifts for her. Although we started a tradition last year that we are going to stick with. Santa will bring something to the whole family in honor of Jennifer. So at least her stocking will be taken down and laid out.. even though she won’t be here to run to it. .. Just thinking about it all makes my stomach hurt… and clench .. And the same words tunnel their way through my brain.. Keeping me up. .. but she’s only 6. just barely 6.  And then my brain[…]

a napkin

**** sometimes I write posts and don’t post them right away. This is one of those written in August**** Trying to prepare for Jonathan to start kindergarten. .It forces answers a lot of questions and fears I have been lucky enough to avoid. But it seems to help a new crop of them bloom. We got out Jennifer’s uniform because its a unisex top and he wants to wear hers. It matters a lot to him. Once alone with these bright blue memories I held them to my face.. desperately trying to find a piece of her to breathe in.. I couldn’t. Tony did find a hair of hers.. We carefully wrapped around the button. I gave him 2 and explained the other 3 we would save for her other younger brother(s) and sister(s). **Bridgette not yet born I didn’t know if he would have 2 little sisters or little brothers.[…]

simple complication

Don’t stop moving.. Don’t stop doing. .. Don’t stop going..I think that’s the key for me right now. The only way I am still standing. ..perhaps standing is a stretch.. But I am upright. Because the moment I am not fully occupied in something the tears find me. A 15 minute drive in the car .. Just me and my littlest girls and I find myself crying. Not hard. And no reason. Just tears. Cold tears. Pointless tears. My workouts suck. I used to take pride in what I could accomplish in my gym. I used to feel freedom working out.. A place to escape mentally and physically. But now its not like that. Now I feel trapped. Doing the movements and going through the motions. But not really throwing myself into it. So the release, the healing, I once found is evading me. Maybe because all my energy is[…]

Guest Blog – Alia

I usually try to introduce a guest blog.. but this one.. well it introduces itself. All I can say is I love you Alia and I truly appreciate you.  Diagnosis I was fifteen years old, and I was annoyed. My little sister (J) wasn’t feeling well- again- and we were at a music competition I had been preparing for for months. I tend to get hyper focused on a task (whether that’s an admirable trait or a selfish one depends on the circumstances), and simply put, she was distracting me. And distracting my parents, whose attention I wanted to help with my nervousness. I didn’t have any idea that what was coming would be so much worse than any music judge’s criticism. The next thing I remember is her going in to have a ton of tests, and then being diagnosed. Acute lymphocytic leukemia (ALL). I was surprised (kids weren’t supposed[…]

tomorrow

Tomorrow I will dust myself off.. Tomorrow I will pick myself up … but today.. Today I crumble. Today my 2 year old toddles over to me and asks to be picked up. Today she offers to kiss my owie and wipes away my tears. Today we start to clean up the garage.. and find bags of my dead daughters clothing. Ones she wore and lived in before we knew the string of letters DIPG and the power they would forever hold over me. Today I ache for her so deeply. Today I am a really crappy mom and today I feel horrible about it.. but can’t seem to stop. .. today. today I find watermelon on clothes she never wore but were in her things. ok sissy .. tomorrow ok.. better tomorrow.. i just can’t today.. sorry Today I bury my face in the jammies she wore so often.[…]

memories

My daughter. I only know my Jennifer in pictures now. And she changed so much after the above one was taken.. I hardly remember her with chubby cheeks like that… How would she have changed in the nearly two years we lost? It used to be I could look through photos of her and not cry. But now I do nearly every time. I don’t really understand that. How as time goes on the pain gets more precise and sharp. I used to be able to talk about her without fighting the tears.. now I almost always do. The words catching often. .. my thoughts swimming away from what I am saying off to memories.. and a different place. My memories .. the only place I can find her or touch her anymore. And I am scared to allow myself to remember. To close my eyes and touch her in[…]