Tag: water play

Wyatt

Another little boy died from DIPG.. well so many have.. but one in particular. He looks eerily like my boys. And his mom and I have gotten very close. His name is Wyatt Norell. He was just a baby really. I have been awash in so many emotions in the tail end of his struggle and since he joined my Jennifer. So surreal to be on the complete other side of equation. .. With my phone in my hand.. volume turned up and heart constantly in my throat waiting for the phone to ring. The first time I talked to her on the 12th.. they both now will eternally share that number.. I hung up and collapsed in my kitchen. A sobbing mess. My boys came into me. And just hugged me. Looking at me with such love and concern. “What is it mommy?” So I told them. A little[…]

wait

See you at dinner. That’s what Tony said to me tonight before he went to bed. Tomorrow is his first day back to work. Its going to be a rough transition for all of us. His work has been so good to us.. they are allowing him to come back slowly, 3 days a week. Its interesting, looking at that top sentence I realize how much that thought used to carry no weight. It was normal life.. it is normal life for most people. Maybe thats what makes it so profound a thought for us.. it shows how changed we are. That being apart for a day is scary. What a great man he is. All he sacrifices for us. He missed so much time with her.. its one of the reasons I get so upset she didn’t have that 9 month average time parents are quoted with DIPG. We[…]

happiness

We all miss her. At different times in different ways.. but there is a constant current ..i miss her… flowing through our household. Yesterday i saw the first offering from baby Charlotte in Jennifer’s room. One of her lovies. 4th kid I finally got smart and bought a bunch of the blanket animal she was becoming attached to. I found one on the floor of Jennifer’s room.. at the foot of her bed… right where the boys leave there things for her. I leave the stuff there for a few days and then put it away. Nobody complains and they all seem to respect each other.. so far only one offering at at time.. I walk by her room many many times during a day. I don’t go in it often. If I am writing something I will be sharing publicly I always do it in there.. not my blog[…]