Vacation time… . . . something I should be so happy about and grateful for.. There are certainly parts of it I am. The people that have opened up their vacation home to us…I am grateful for generous people.. That I have 3 living and healthy (I hope…I think) children.. immensely grateful.. but also full […]
If you are interested….this is Jennifer’s service. Sorry it’s taken so long but I am finally ready to share. The beginning is a little shaky but it settles down… https://www.youtube.com/watch?v=S4W6ZBGyPDY
**It was suggested to me that I write about my experience with tumor donation … to hopefully help other parents of children with terminal brain cancer. So please feel free to share** Tumor donation. Not something I ever imagined we would have to discuss in regards to one of our children. Our daughter Jennifer […]
I got a email from Dr. Monje…the one whose lab has Jennifer’s tumor cells and will now be sharing them with other researchers. At the bottom of the article you will see credit given for the funds that have been donated in her name. Thank you so much! article!!! I was so excited I felt […]
I woke up feeling like I was hit by a truck… weighted down and sluggish. Shoulda just stopped there.. but I didn’t..I went for a run. It was a crappy run.Oh and full disclosure since I hope to see so many of you at the 5k in May…I use the term run very loosely.. its […]
Music moves me…music permeated today… this song is the theme song for the first half of today… 2 months come… and gone.. This morning was really hard for me. We drove to Monterey… to be near the ocean and eat breakfast at a little place we really enjoy. Last time we were there was about a […]
2 months ago.. I was holding her. feeling her heartbeat…hard and fast… Tomorrow 2 months ago that beautiful heart finally succumb… stopped beating. The distance between me and her life grows…every time I go to bed another day is added allowing the gap between our time together to grow…but also a day closer to reuniting […]
I’m kicking…as hard as I can… trying to not sink under. . 2 months is looming… pulling me down. . This week has been leading me this direction.. today was a day where I felt like it has taken everything in me to not give in.. to not be swept away.. I had to keep […]
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