In the past 20 years only 4 new drugs have been approved in first instance for pediatric cancer use. In contrast, in 2012 alone, 23 drugs were approved for adults.
I have mastitis and feel really horrible so I am not blogging tonight. But I did want to say so many people ask/comment that they aren’t sure if knowing strangers care and are reading helps…
No explanation needed. It is an honor to bear witness to your journey. Ready and wanting to do more when the time is right. The heartprints you, JLK and your family have made are many and meaningful. Glad you are taking care of yourself tonight.
I read every blog and it has changed my life and continues to with every entry. I am a friend of a friend but I’ve never felt so connected to anyone or anything in my life. I’ve cried for you, for Jennifer, for your family…daily sometimes… You’ve touched my life in a way I don’t even know I can put words to. I am a mother of two…and your pain is astronomical, unimaginable and so real and takes my breath away all at the same time. I don’t know if you would even understand me saying thank you…but you’ve changed my life and despite that I’ve never met you or your daughter, I feel you both in everything I do. I’m forever touched and changed by your life, by Jennifer’s life. Thank you. My husband who is not emotional…him and I have laid in bed crying for you, for her, together. I’ve never seen or heard him feel that way in all the time I’ve known him. Thank you for sharing your love, your grief, your grace and your love. All my love and prayers to you and your family.
I hope you start feeling better soon. I know how painful it is! Also thank you for recognizing that we wonder if it helps…and I am so glad that it does!!!!
I’m sorry you are dealing with mastitis on top of everything else! Prayers for a quick healing!
I’m so happy you read what we all write…everyday I wonder how you are doing and at night before I go to bed I read your blog and through your words I can tell exactly how your day was. Thank you for opening up to all of us strangers. We love you and pray for you daily!
I have read this everyday since I was aware of the blog (about 2 days before you lost her). I have spent hours reading, and re reading your blog. You are amazing. Jennifer was amazing. You are the kind if person who will do GREAT things in the time you have been given. Your honesty, committment, and determination will have a huge impact. You are so real and in the moment. I have a hard time reading at times… you are living my worst nightmare. Yet I force myself to read it, and cry, and become angry for your loss. She is beautiful… so much life and love in her eyes! We will all fight for her, and for things to be different with funding. I know that doesn’t mean much when she is gone… but know that you and your amazing daughter have already made a significant impact, and will continue to do so. Keeping all of you in my prayers! Thank you for sharing Jennifer with us. Thank you for sharing yourself.
I am a stranger and I eagerly read your blog every night. I can’t wait to hear more about your Jennifer and your incredible bond with her. I know people have told you this so many times, but your writing has influenced me to love my 2 toddler girls even more than I ever thought was possible. Tomorrow is unknown and I can’t take today for granted. You are amazing for sharing all of your words with strangers. So thank you for the gift you have given me and my girls. Jennifer’s story has changed me for the better. She really is a special girl, and I know I will never forget her story. You are so lucky to be her mommy!
Hi Libby, I am also a stranger reading and following your blog daily. I am so sorry and heartbroken for you and just wanted to tell you that you are not alone.
Oh Libby, I hope you feel better soon. I read your blog every morning. You make me strive to be a mom half as good as you. You are truly an amazing woman of strength and an amazing mother to all of your children!! I just wish I had the chance to get to know you and Jennifer through our mommy group. She was one incredible child!! And still is…
I hope you feel better soon Libby. Take it easy and try and rest. You, Kennifer and your family are always in my heart and im thinking of you all constantly. Love you all ♡
I hope you feel better soon Libby. I had mastitis before and know how painful it is. I also am a “stranger” that read and followed your blog since day one. I am still here praying and thinking of you and your family daily. God Bless.
Thank you for letting the Glitter Squad of us strangers that care deeply for your wellbeing that you are under the weather. I so worry about your physical wellbeing on the few days you do not blog. Please take care. Jennifer would want her mommy feeling better soon.
So sorry about the mastitis. That’s the worst! I just read this one and “normalcy,” and I just wanted to say that it made my day hearing about you going to get frozen yogurt. I think Jennifer would love seeing you guys bonding over her favorite things.
I read every post that you type, mostly through my tears. I have wanted to respond to some of your posts, when you question if you are doing this the right way. I cannot begin to imagine your heartache. I have three children myself and would not want to go on without a single one of them! You obviously love so deeply, all of your children. They all know how much you love them and they all need something different from you. It seems Jonathan and you can comfort each other during your grief. You will comfort the other two when and how they need it too. Thank you for sharing JLK with us. I love her through you! You can see what and angel spirit she had! You have done a beautiful job of sharing such an amazing girl with the world. Mastitis is so painful. Hope baby Charlotte keeps nursing to help you along!
Libby, I am a stranger and read your posts everyday. I am praying for your family every day and know God hears every prayer!! We love you and stand with you in this sad time. May God shower you and your family with His blessings!!
Mastitis is horrible, I’m sorry! I am also another stranger who reads your blog. You are so strong, and such an incredible momma. I love the pics of your kids at the local frozen yogurt place and amusement park. I hope you’re feeling much better today, you are in my thoughts.
I’m so sorry about that. I had it too. I hope it gets better soon. Warm showers, warm heat. I had these great thing you heat up in the microwave and you put them on you (they looked like donuts! As if I needed another reason to think about donuts…) and it helped. Prayers for this too.
Hope you’re feeling better! I have to say, I’ve been really impressed that you’ve continued to nurse Charlotte through all of this. I don’t think I would have had it in me. You’ve impressed me in many ways. Continuing to send love your way.
I’ve never met you, but I care and I read, every night. God be with you on your journey. Your emotions are what they are and will be what they will be. Follow them where they go and they will take you where you need to be. If you try to change them or push them away, that’s when you get into trouble. Emotions are not logical, they aren’t meant to make sense. I can’t imagine your agony, may God bring you peace.
Aw man. I hated getting mastitis ! Hope it resolves quickly !
No explanation needed. It is an honor to bear witness to your journey. Ready and wanting to do more when the time is right. The heartprints you, JLK and your family have made are many and meaningful. Glad you are taking care of yourself tonight.
Oh no! I hope you feel better soon!
I read every blog and it has changed my life and continues to with every entry. I am a friend of a friend but I’ve never felt so connected to anyone or anything in my life. I’ve cried for you, for Jennifer, for your family…daily sometimes… You’ve touched my life in a way I don’t even know I can put words to. I am a mother of two…and your pain is astronomical, unimaginable and so real and takes my breath away all at the same time. I don’t know if you would even understand me saying thank you…but you’ve changed my life and despite that I’ve never met you or your daughter, I feel you both in everything I do. I’m forever touched and changed by your life, by Jennifer’s life. Thank you. My husband who is not emotional…him and I have laid in bed crying for you, for her, together. I’ve never seen or heard him feel that way in all the time I’ve known him. Thank you for sharing your love, your grief, your grace and your love. All my love and prayers to you and your family.
Feel better soon Libby! Mastitis is terrible!
Love and hugs to you from another caring stranger ❤️
Get well soon and take care of yourself
I hope you start feeling better soon. I know how painful it is! Also thank you for recognizing that we wonder if it helps…and I am so glad that it does!!!!
Feel better! We will be here waiting 🙂 much love
I’m sorry you are dealing with mastitis on top of everything else! Prayers for a quick healing!
I’m so happy you read what we all write…everyday I wonder how you are doing and at night before I go to bed I read your blog and through your words I can tell exactly how your day was. Thank you for opening up to all of us strangers. We love you and pray for you daily!
Feel better soon xoxo
I have read this everyday since I was aware of the blog (about 2 days before you lost her). I have spent hours reading, and re reading your blog. You are amazing. Jennifer was amazing. You are the kind if person who will do GREAT things in the time you have been given. Your honesty, committment, and determination will have a huge impact. You are so real and in the moment. I have a hard time reading at times… you are living my worst nightmare. Yet I force myself to read it, and cry, and become angry for your loss. She is beautiful… so much life and love in her eyes! We will all fight for her, and for things to be different with funding. I know that doesn’t mean much when she is gone… but know that you and your amazing daughter have already made a significant impact, and will continue to do so. Keeping all of you in my prayers! Thank you for sharing Jennifer with us. Thank you for sharing yourself.
Feel better soon! Always thinking of you and Jennifer.
Thank YOU…….and bless you!
Lots of warm compresses…….hoping this passes quickly.
I hope you feel better soon and I am glad our thoughts and prayers help. Much love, Vanessa
I am a stranger and I eagerly read your blog every night. I can’t wait to hear more about your Jennifer and your incredible bond with her. I know people have told you this so many times, but your writing has influenced me to love my 2 toddler girls even more than I ever thought was possible. Tomorrow is unknown and I can’t take today for granted. You are amazing for sharing all of your words with strangers. So thank you for the gift you have given me and my girls. Jennifer’s story has changed me for the better. She really is a special girl, and I know I will never forget her story. You are so lucky to be her mommy!
Get well soon Libby.
Keeping your family in my thoughts and prayers.
Always keeping you and your family in my thoughts. I hope you feel better soon.
Get well soon Libby! We will be here
Hi Libby, I am also a stranger reading and following your blog daily. I am so sorry and heartbroken for you and just wanted to tell you that you are not alone.
get well soon xoxoxox
Also I know I probably just said all the wrong things and I’m sorry.
Feel better, Libby! Mastitis is terrible.
I had my first (of many) no into a yes moments last night in honor of JLK. You and your beautiful family are always in my thoughts and prayers.
I hope you feel better soon, I don’t comment on many of your blogs, but I do read them. Jennifer is often in my thoughts.
Libby please take care of yourself. Easier said than done, I know, but please take it easy.
Oh Libby, I hope you feel better soon. I read your blog every morning. You make me strive to be a mom half as good as you. You are truly an amazing woman of strength and an amazing mother to all of your children!! I just wish I had the chance to get to know you and Jennifer through our mommy group. She was one incredible child!! And still is…
I hope you feel better soon Libby. Take it easy and try and rest. You, Kennifer and your family are always in my heart and im thinking of you all constantly. Love you all ♡
Thinking of you today and hoping you feel better soon. From a “stranger-friend” in Minnesota!
I hope you feel better soon Libby. I had mastitis before and know how painful it is. I also am a “stranger” that read and followed your blog since day one. I am still here praying and thinking of you and your family daily. God Bless.
Another stranger thinking and praying for you all daily! Get well soon.
Thank you for letting the Glitter Squad of us strangers that care deeply for your wellbeing that you are under the weather. I so worry about your physical wellbeing on the few days you do not blog. Please take care. Jennifer would want her mommy feeling better soon.
I hope the downtime you’ll be forced to take with mastitis is helpful for you. I hope you feel better very, very soon, at least the mastitis. Hugs.
Feel Better….Jennifer is absolutely adorable! Such sparkle in her eyes!!!
So sorry about the mastitis. That’s the worst! I just read this one and “normalcy,” and I just wanted to say that it made my day hearing about you going to get frozen yogurt. I think Jennifer would love seeing you guys bonding over her favorite things.
I read every post that you type, mostly through my tears. I have wanted to respond to some of your posts, when you question if you are doing this the right way. I cannot begin to imagine your heartache. I have three children myself and would not want to go on without a single one of them! You obviously love so deeply, all of your children. They all know how much you love them and they all need something different from you. It seems Jonathan and you can comfort each other during your grief. You will comfort the other two when and how they need it too. Thank you for sharing JLK with us. I love her through you! You can see what and angel spirit she had! You have done a beautiful job of sharing such an amazing girl with the world. Mastitis is so painful. Hope baby Charlotte keeps nursing to help you along!
i am a stranger. i learned of you through social media. and i’ve been reading your every word – with tears in my eyes, then streaming down my face.
your sweet girl is in my thoughts. you and your family are in my prayers. my heart aches for you. a lot.
i am one of many strangers, lifting you up in your grief.
Still here, still reading, still sending waves of love to your whole family. And mastitis does suck 🙁
Feel better soon! I look for your blog everyday! Thank you for sharing your thoughts and feelings.
I am out here. I rarely comment but I am here. You are in my thoughts every day.
Libby, I am a stranger and read your posts everyday. I am praying for your family every day and know God hears every prayer!! We love you and stand with you in this sad time. May God shower you and your family with His blessings!!
Mastitis is horrible, I’m sorry! I am also another stranger who reads your blog. You are so strong, and such an incredible momma. I love the pics of your kids at the local frozen yogurt place and amusement park. I hope you’re feeling much better today, you are in my thoughts.
I’m so sorry about that. I had it too. I hope it gets better soon. Warm showers, warm heat. I had these great thing you heat up in the microwave and you put them on you (they looked like donuts! As if I needed another reason to think about donuts…) and it helped. Prayers for this too.
Hope you’re feeling better! I have to say, I’ve been really impressed that you’ve continued to nurse Charlotte through all of this. I don’t think I would have had it in me. You’ve impressed me in many ways. Continuing to send love your way.
I’ve never met you, but I care and I read, every night. God be with you on your journey. Your emotions are what they are and will be what they will be. Follow them where they go and they will take you where you need to be. If you try to change them or push them away, that’s when you get into trouble. Emotions are not logical, they aren’t meant to make sense. I can’t imagine your agony, may God bring you peace.