Tag: garlic festival

we’re coming

When we get close to home I have a silly tradition that we will call out to whoever is waiting for us that we are on our way. Today it was just me and Charlotte and I started the call.. I called them one by one.. Daddddyyy and she would echo me..then  Bubbassss ..and  Brotherrr .. then I stopped. . I guess I must usually have at least 2 of the kids in the car because today it made me choke and gag. I gripped the steering wheel as tears bypassed the stinging stage and immediately began to fall. One missing. I whispered.. Jennifer.. over and over again. Charlotte already knowing the routine had continued on with it. “We’re cominggg” she was so damned happily yelling from behind me. I pounded the steering wheel. And then I said louder.. Sisssyyy .. Charlotte giggled and kicked, swinging her legs out.. Calling[…]

average

I had a phone call with one of the aunts of Dannys warriors. She is… they are… amazing and I think they are poised to do good things in the fight against pediatric cancer. . I heard in her a joy.. a hope.. that we lost 5 months ago. A piece of me that I miss. The part that believes in miracles. I remember it though and I will hope that they find their way to that miracle. We talked about how it was for each of our families .. 9 months 4 days ago for them and 9 months for us.. 9 months from the very last birthday that we will ever get to celebrate her turning a year older. 9 months since we learned of DIPG. . and that some childhood cancers offer no hope. 0% survival. 9 months. The average amount of time a child with DIPG gets to[…]

deserve

I am sitting down with plans to write about our fluttering awareness/fundraiser.. but I can’t.. there are some other things that are weighting me down.. S0 I will do what I do.. I will write and see where my fingers take me.. I am changed now.. I literally feel differently now since it hit me that she has cancer. Writing this post. literally changed me .  It took over 8 months for it to truly hit me.. and it has just deepened my resolve to want to do something.  Its just a terrible feeling I am struggling with right now.. I just miss her. And I want to make her death count for something and I don’t know how to do it. I don’t know how to reach people.. how to make us/her and most importantly the facts get out there. I just want to make it so kids stop dying from this[…]