Tag: 9 months

half the person

She was incredible. I can never really explain her well enough. Why do I have to? Why is she gone? So many kids claim her as their best friend.. (but it was always truly Jonathan) and that’s not because she is gone.. Its always been who she is. She had a “boyfriend”  (she never called them that .. but the cutest boys did seem to flock to her and she certainly never minded!) and a friend everywhere we went.  She would even make friends at the store while we shopped.                   I don’t know what it was but there was just something about this girl of mine that was pure magic. And I miss my magic girl something awful lately. We survived another 12th.. barely though. This has been a terrible time for me.. for us. Jonathan and Tony are just down[…]

average

I had a phone call with one of the aunts of Dannys warriors. She is… they are… amazing and I think they are poised to do good things in the fight against pediatric cancer. . I heard in her a joy.. a hope.. that we lost 5 months ago. A piece of me that I miss. The part that believes in miracles. I remember it though and I will hope that they find their way to that miracle. We talked about how it was for each of our families .. 9 months 4 days ago for them and 9 months for us.. 9 months from the very last birthday that we will ever get to celebrate her turning a year older. 9 months since we learned of DIPG. . and that some childhood cancers offer no hope. 0% survival. 9 months. The average amount of time a child with DIPG gets to[…]