This morning I woke up feeling clean. The fears of last night subsided and I feel compelled to write. To say how grateful we are to be waking up with our children. So many parents that lose children don’t get the knowledge we have been gifted. Knowledge that the day she was diagnosed was also […]
Christmas… We couldn’t have pulled it off without help from family/friends. Friends who wrapped presents and family who stayed here til 1am Christmas Eve to help assemble and move furniture. We got our new couch…our new snuggle spot…I love it. I am sitting on it right now. Will this be the place she takes her […]
Expectations… are a waste of time and always seem to be wrong. Yet I cannot stop myself from having them. i expected the last day of radiation to be a celebration. For me it was anything but. Because now we do nothing…At least during treatment I felt like we were fighting, like we were doing […]
Tonight is our last night here in our little apartment. Even if radiation doesn’t happen tomorrow we won’t need a overnight here. I am glad that she will be happy to be done. Radiation is hard on a little body. But now I have to share her everyday…and she has to share me. I miss […]
Firsts and lasts. I feel like thats my everyday. First and lasts. Radiation went amazingly well. Beforehand todays anesthesiologist pulled me out to say it was up to us if we wanted to cancel or not. That the way JLK is when asleep for radiation is the hardest case they have seen. Just her breathing […]
Up and down…up and down. Thats our everyday. This morning was a rougher one again. Radiation should be very quick. Today took 1.5 hours for Jennifer. Breathing difficulty again. Because she has already been cancelled so much and we are so close to the end they kept at. Going into recovery today she was still […]
*****Before I journal I want to explain that we move the emphasis of fundraising over to http://www.theyoungandbrave.com/warriors/jennifer-k/ The reason for that is the website/foundation gives us 100% of the donations. Also people that donate can get a tax write off…We are trying to add to that site all the money from the gofund me site….I wanted […]
Last night was long. Teething baby made for little sleep but I woke up to this sight next to me. How could it not be a great day ahead……….. Then getting into the car she fell. I was getting the baby in, I didn’t see it. But the sound of her crying tore into me. […]
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