Tag: disneyland

dirty truth

Grinding. Heavy. Sharp. Never the words I wold have imagined myself using to describe Christmas time. Short. Sensitive. Hurting. Never the words I would have imagined my husband using to describe us this time of year. Everyday is just hard. No other way to describe it. The ache for her is palpable. The memories of our last year with her. Such a short time we knew she had cancer.. This time of year brings it all back. The family pictures we took.. . Her face swollen with steroids. . A trip to Disneyland. . Presents that barely got played with.. And now. A vast empty. How can it hurt this much? How are we supposed to survive this? I don’t want to do it all over again. But I am. We are. Day after day. Its not fair. Why my daughter? I hate this part of it. The searing and[…]

the longest line

This time last year Tony and I were on the best trip of our lives. A trip to surprise trip to Disneyland with just Jennfier and baby Charlotte. She was 7 months old so totally easy and flexible. The trip was all about Jennifer, what she wanted to do and when she wanted to do it. It was perfect. We had so much fun. She had so much fun. She was so happy to be all done with radiation. We thought this was just the start of a honeymoon period most kids with DIPG get.. a time to make memories and pack a lifetime in. We were so lucky to get gifted two incredible days there. One with a tour guide taking us through the crowded park and the other day with passes for her favorite rides.    We will forever be grateful for the generosity that allowed us to[…]