Read personal stories from our founder and Jennifer's mommy, Libby, along with other Warrior Moms and news from our Unravel team.
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So I had my day planned.. . I was going to practice my speech for the upcoming MNO this weekend since I haven’t done it yet .. and then maybe carve out time to blog about how often people are surprised by my smiles.. and the joy they see in my family that is ALWAYS present.. […]
flash.. Today it starts I guess.. flashes. Constantly. Of her final weeks. I feel like I am suddenly on the verge. Scared I am about to topple off.. Because I know its not a matter of it.. simply of when. But I can’t do this right now. I leave tomorrow for Seattle to give the […]
We woke up all with Jennifer on our hearts and minds… And as it turns out the feeling was mutual. My niece came over last night and saved Christmas for the second year in a row. She came over to wrap presents for my kids. Without her to talk with and to honestly do most […]
I have so much to do right now for Unravel. I am trying to get a few of my blogs selected in different contests.. a way to reach a new audience. We are trying to get a informational video ready and a new brochure and 2 MNOs and so many other things I should be […]
I miss her today with all of me. I went for a run. It usually clears my head.. gives me space… But not today. I am hurting. I remember so clearly 6 months ago. Calling my sister to tell her to come.. then not come.. then come. I wasn’t sure that we needed her… wasn’t […]
I was invited to this thing called a nano course here at Stanford. Its a small invite only week long conference. The basic idea is to train some parents/foundation people to be liaisons for the medical community. What that means is much of what I was taught went over my head!! Some easy take aways […]
We went to an event last night.. me Tony and our.. well we don’t have a official title nailed down.. but basically our COO for Unravel.. It was to support Innovators Network who basically support Project Violet. I am a huge fan of what they are doing and how they are doing it.. far too intelligent […]
**It was suggested to me that I write about my experience with tumor donation … to hopefully help other parents of children with terminal brain cancer. So please feel free to share** Tumor donation. Not something I ever imagined we would have to discuss in regards to one of our children. Our daughter Jennifer […]
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