
I was invited to this thing called a nano course here at Stanford. Its a small invite only week long conference. The basic idea is to train some parents/foundation people to be liaisons for the medical community. What that means is much of what I was taught went over my head!! Some easy take aways […]

As yet another 12th comes closer I start to think about her death constantly. About what I was doing and feeling on February 9th. Remember with me.. That ring.. I remember that day. My friend coming to get it to try to save it for me.. How I hated having it off for a few […]
Tony just took the boys out to go shopping for my birthday which is tomorrow. He doesn’t even bother asking what do I want.. we both know you cant buy the one thing I want. The moment I heard the garage door close I came to her room. .. I hear the sounds of the […]
I am a living breathing nightmare. “I’m sorry you are living this nightmare” That’s the only words I have for other parents when their children die.. I can even say it when its been years and years .. I am going to venture a guess.. by the hollow I see exposed when they know that […]
I feel like I am circling the drain right now… my muscles tightened and ready to snap. .. surviving only as a reflex. Its like so much is hitting at the same time. Tony being back at work was the least of it actually. I did ok with it. Set little goals like getting our […]
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