Tag: sisters

our orchestra

Sissy. This presence.. this person my girls don’t really know. She is everywhere. She is nowhere. Driving down the road Nicholas got excited and pointed exclaiming  “look its SISSY”. with such conviction I had to turn and look. We were driving past the cemetery. I looked in the rear view mirror as Charlottes head turned back forward. She did not have the same look of disappointment I felt.. just acknowledgment.. Because that is the sissy she knows. Its hard to balance it. For Charlotte she wants to know her. To have a connection to be able to share stories. .. So she reaches for them. She listens intently to her brothers when they talk about her. . She takes a lot of ownership in Unravel. When she sees a brochure floating around in the diaper bag she snags it to be able to hand out to whomever she deems fit.[…]

unrequited best friend

It’s happening. Jonathan is surpassing his big sister. Last week he sat next to me and he read. He opened up a book and he read. She was so close to it. She really wanted to learn how. Now when I want her to know the words I write I say them aloud. Because she can’t read. I was trying to meal plan for Thanksgiving. Thinking of what I wanted to make.. I was already feeling the missing shape of her in our lives. And I heard him. Finger to page. Word by word. He was reading. And I cried. For him. Proud of him and his accomplishment. And so sad for never getting to have that moment with Jennifer. Soon he will outlive her. Soon it will all be new to me. A mom for 8 years yet I am experiencing all the firsts with my 6 year old.[…]

lucille packard

I’ve made the drive many times in my life .. Yesterday making it memories flooded back. Jonathan needs a hernia surgery. His pediatrician referred us to Lucille Packard. Its scheduled for first thing Friday morning. Initially on the drive yesterday I remembered the evening we first made the trip for Jennifer. Lost trying to find our way to the emergency room. How big and foreign the hospital looked. .. I still can’t believe that just a few weeks later I would know many of the hallways of this place.. That my almost 6 year old would also. How in the beginning we ate at one cafeteria but eventually decided the bigger one.. the one connected to Stanford was better food for her. So we would go there. I had the same breakfast every morning .. after she was out of radiation. I thought about getting it tomorrow. A yogurt parfait with soggy[…]

fantasy

I feel like a wounded animal. I feel like I am slowly bleeding out. I remember being pregnant and dairy products with dates stamped on it past my due date.. how thrilling that was. Today I pulled out strong cheese for the kids and it was stamped with a date past the one year anniversary of her death. . how? why? no? Today seeing that sent a chill right through me. In a few months I will be done with all the firsts without her.. and just onto the rest of time.. Holiday after holiday.. one less.. Day after day being incomplete. I wonder if one day I will get used to it? Adjust to this new life of mine.. without her. Because right now its a lot like a phantom limb. Like I go to stand on the life I was had only to fall down since its no[…]

6 years

Tonight I should be practicing for a speech I am giving tomorrow. I have only gone through it twice now.. But I can’t seem to do it. Im not sure why. If its something swirling inside of me.. waiting for me to write and get it out.. Or if its too hard to do. Too hard to say the words out loud.. look at pictures of her…remember. Another cancer mom wrote about it .. wrote about how she doesn’t want to forget a thing about her son.. but also can’t bear to remember. I get that. How as the numbness is slowly wearing off that its hurts even more to allow myself to reach for her. Because it is just so devastating. But actually I think thats likely not accurate for me. .. not yet at least. Now the yearn is still so much stronger than I can even fight. I[…]

old life

Constant ache. Sometimes punctured with a pain so sharp I literally clutch my stomach. Today has been a day where even the constant ache is so strong I sometimes doubt the strength of my legs to keep me upright.. so those moments of sharp… when they come.. well they feel like I am being cut apart. But it’s nothing major. Its my attempt to be a normal mom again.. Cooking and cleaning with my babies underfoot. Somehow normalcy makes her absence so pronounced. We did play-doh and had a outside picnic. We had an ant attack and all vacuumed and squished ants with wet towels. Nicholas helped me prepare dinner and we have laundry waiting to be folded. Just a simple day. Like our old life.. except it’s all so different.   I used to say when asked about having 4 kids (or still pregnant with our 4th) how I[…]

bury my daughter

Its been a hard day. Just lots of up and down moments. The little ones.. looking at costumes with Charlotte.. knowing how much she would have loved them if her big sister was around.. because Jennifer would have picked them out for her. Asking a friend for baby doll toy advice for Charlotte.. since I already am feeling like a unseasoned mom to a girl. Then the big ones. Calls from the hospital about bills we know are taken care of. Having .. or maybe its more like getting to say her name.. to say her birthdate and all of her information. I wonder if today was the last day I will be asked that? Followed quickly by a peek into my email to see that her headstone is finally completed. .. we just need to make a final payment and then decide when to put it in the ground.[…]

so much

I came home yesterday to a clean house.. boys happily playing at their coco and papas and a meal on the table. Oh how I love this man. But the thing I noticed first was baby Charlotte in her frozen sisters dress turned shirt. I had them made.. one for each of my daughters. As I walked back to my room after putting baby Charlotte to bed I noticed a gift in Jennifers room. A gift bag full of things with tissue paper at the top. I asked Tony about it and he told me Jonathan has decided on the way home from the vacation that he wanted to give sissy and daddy gifts.. so he did.. oh how I love this boy. so much like his daddy. I often wonder about his little mind.. what is going on inside of it. My final day of the Tahoe trip I[…]

she has cancer

I miss seeing her in new ways.. I miss her little arms surprising me with hugs.. and the sweet way she would talk to her baby sister. All I have now is the pictures. Sometimes I drown in them. . Often after I write I look for the right pictures to fit in. It takes me a good deal of time to find them since I am always pretty sure what I am looking for.. and then I get lost.. In memories .. good and bad.. I look at the pictures in treatment. How beat down and tired she looked. I can see it so well now. Almost like the outline of death around her. At the time though I couldn’t tell. . somehow I was able to just see beyond the dark circles and just see my daughter. At first her eye was so jarring to me.. but at some[…]

DC

After I wrote last time I set out to get packing.. I found our backpack and looked inside. Just a few things from our last trip, her Make A Wish to DisneyWorld and even though this wasn’t her bag it had her stuff in it. A barely touched magic marker coloring book. I had no idea what to do with it. I didn’t want to throw it away but I also have nowhere to keep it. I already have so much of her stuff saved and it wasn’t like she really colored these pages. I decided to go put it in her backpack in her room. Once I walked in I started sobbing. I just didn’t want to go without her. I had been walking all around the house trying to figure out what to bring of hers on the trip.. to have her with me. Its so hard to[…]