Tag: signs from dead child

roses in the ocean

  **I don’t often re-read what I write. But tonight I did. And this posting is a mutant writing. With makes it a perfect depiction of what its like in my head. Where nothing seems to fit together or make sense coming from one person.. And I am trying and failing not to freak out but all of my pictures are getting distorted as I upload them from my “good camera” luckily I snapped a few to text to Daddy with my phone.. So my apologies for lack of pictures. ** Jennifer loved the beach. So very much. We live so close to it. But I almost never took her. because I always had a baby or was pregnant.. or .. well really time. Its because I counted on time to do it later. I really wish I had taken her more often. Tony left on Sunday so its just been me[…]

a thousand years

Do you know I still haven’t dreamt of her. Not the real her. I’m ashamed to admit that .Its only been the anguished her that has found me in the dark of the night. The little girl that died in my arms. I have dreamt of her. The horror that she somehow survived day after day.. That pain filled girl comes to me. ..but its not her. please please please i need that not to be her. But I know.. I know somehow she is trying to get to me. Trying to get to me. To reach me. My 6 year old is trying to get to me and she can’t. And I am so scared its my fault. That I am letting her down all over again. I’m sorry jennifer. I’m so sorry I know this is the key. This is they way I will be able to finally[…]

her Christmas gift

We woke up all with Jennifer on our hearts and minds… And as it turns out the feeling was mutual. My niece came over last night and saved Christmas for the second year in a row. She came over to wrap presents for my kids. Without her to talk with and to honestly do most of it I don’t know if it would have gotten done. It is so hard to not be wrapping for her.. So I just avoid it at all costs. As I fell asleep silent tears hit my pillow..  as I was helplessly wishing I could give her a present.. This morning the very first thing Nicholas did was ask my a question about sissy.. He was groggy, wiping sleeping from his eyes and asked if she used to wear boxers.. I was taken aback and at first said no.. but then realized she probably did[…]

a napkin

**** sometimes I write posts and don’t post them right away. This is one of those written in August**** Trying to prepare for Jonathan to start kindergarten. .It forces answers a lot of questions and fears I have been lucky enough to avoid. But it seems to help a new crop of them bloom. We got out Jennifer’s uniform because its a unisex top and he wants to wear hers. It matters a lot to him. Once alone with these bright blue memories I held them to my face.. desperately trying to find a piece of her to breathe in.. I couldn’t. Tony did find a hair of hers.. We carefully wrapped around the button. I gave him 2 and explained the other 3 we would save for her other younger brother(s) and sister(s). **Bridgette not yet born I didn’t know if he would have 2 little sisters or little brothers.[…]

simple complication

Don’t stop moving.. Don’t stop doing. .. Don’t stop going..I think that’s the key for me right now. The only way I am still standing. ..perhaps standing is a stretch.. But I am upright. Because the moment I am not fully occupied in something the tears find me. A 15 minute drive in the car .. Just me and my littlest girls and I find myself crying. Not hard. And no reason. Just tears. Cold tears. Pointless tears. My workouts suck. I used to take pride in what I could accomplish in my gym. I used to feel freedom working out.. A place to escape mentally and physically. But now its not like that. Now I feel trapped. Doing the movements and going through the motions. But not really throwing myself into it. So the release, the healing, I once found is evading me. Maybe because all my energy is[…]

tomorrow

Tomorrow I will dust myself off.. Tomorrow I will pick myself up … but today.. Today I crumble. Today my 2 year old toddles over to me and asks to be picked up. Today she offers to kiss my owie and wipes away my tears. Today we start to clean up the garage.. and find bags of my dead daughters clothing. Ones she wore and lived in before we knew the string of letters DIPG and the power they would forever hold over me. Today I ache for her so deeply. Today I am a really crappy mom and today I feel horrible about it.. but can’t seem to stop. .. today. today I find watermelon on clothes she never wore but were in her things. ok sissy .. tomorrow ok.. better tomorrow.. i just can’t today.. sorry Today I bury my face in the jammies she wore so often.[…]

follow the signs

The tears are close right now.. Seemingly just below the surface and that really surprises me. But I feel like my strength is also. .. Because I am feeling her again. Its like she knows when I need her the most. Jennifer guides me.. when I allow her to. I am finding that when I just go with things.. that she sends me signs to say she agrees.. And somehow I know its her. It’s been something that has bonded me not just with her.. but also with Jonathan in particular since he always seemed to have that easy and strong belief that it was her way of connecting to us.. He struggles with that a lot lately. Trying to explain the logic of what happens. Wanting the sign to be so obvious that there is no room for doubt. It has bothered me lately hearing that coming out of her[…]

SacTownMNO

I was apart from my kids pretty much the whole weekend. But they are my why and this is my how. I said it in our Unravel video, but I truly don’t do this just for Jennifer. I love to talk about her and share her name, but I don’t need a non-profit to do that. I am a pretty loud mouthed lady! I do however need the non-profit to do my very best to protect my living children. .. See its too late for my Jennifer. But I know .. and I am scared every single day it could happen to us again. Or to one of their best friends.. or one of their children. I know the threat and I have to do something about it. MNO truly is a great way to do that. And this MNO was a blast. Let me tell you SacTown is no[…]

Sacramento

I rarely share photos of the signs we get.. but wanted to share the one above. It was the night before her birthday. A night Tony and I should have been planning ways to show her our love for her.. Instead she sent us her love.. some from Mommy and some for Daddy. Our birthday trip minus the birthday girl. She was born in Sacramento. It is a great town with so much to do for our aged kids. We missed her.. terribly.. but we made memories with our living babies while we grieved the one missing. Forever you will be missed. …until there is a cure…

5 minutes later

** I wrote this last week .. but never actually shared it.. I can’t remember why now! **   I need to write.. I want to write but something keeps stopping me. Like I am just scared to let all that is bubbling inside of me out. This weekend was a lot. A lot. It started out with her party.. Saturday morning we finished up decorating the cupcakes and then it was time to go. To get in the car for a thank you to our community and all the people that cared about our family . . and a chance to celebrate with them and our friends this spectacular girl of ours. But I was scared to go.. about how hard this might really be. Was it the right choice for me and Tony.. the right choice for our kids. I make none of the decisions lightly.. but that[…]