Tag: marriage after child loss

his summer – my fall

I think maybe I am starting to find my groove. Find my way in this new life of mine.. Figuring out a way to carry myself through the difficult times. My body ..  my heart know what is coming and I think I am unintentionally filling my tank.. and my reserves .. Because I find myself starting to brace against the time that I know is coming. ..In my horizon is her birthday.. The day we finally became parents.. the day we learned we would without a doubt lose the child that gifted us that title. A deep internal gritting and grinding.. A fear and a slow burn starting to churn away.. Because ready or not its coming.. but because of those shadows looming in the distance I also see the light. .. The literal light .. sunlight coming through the trees. I am aware of the warmth of the[…]

spoken in silence

I miss you Jennifer.  I wish I had something more.. something deeper and more profound to say. Words fail me though. . Because I constantly miss her.. Its always there.. sometimes just a subtle current. But not always.. it scares me how quickly the tide can rise up and drown me in my own sorrow.. .. I mean I get it.. I think if I was an outsider looking in I would get it.. Its my daughter.. My child. I can cognitively understand that it will never really get better.. But it scares me still, the times that I can feel it slowly building and growing power.. Or times that it just swells up suddenly.. How easily I can still succumb to the simple yet echoingly deep grief. How I can look up at her picture and yearn.. so incredibly. .. to just follow her into the light.. I imagine[…]

o for outstanding

Those sudden surprise moments.. The shock of being unprepared is like jumping into the freezing cold water of grief. .. It steals your breathe and even when you start to regain it.. its stays sharp and ragged. Your heart is beating hard and fast and you look around disoriented. .. fight or flight they call it right? It happened the other night getting Jonathan’s report card. Tony was starting to talk to him about a few things and I stopped him and asked if we could talk privately later about how we wanted to approach it.. To be sure we can be on the same page.. no big deal. normal parenting.. Except.. nothing is normal parenting for us anymore. When will I learn that? He said “yes good point” .. and looked at our sweet blue eyed boy and elaborated ” That this was uncharted territory for us.. ” At[…]

..because life keeps happening..

It’s coming. I can feel. Even if I didn’t know it. Even if I didn’t remember it I can feel it. physical .. unrelenting.. grief.. A heaviness in my chest. A strain on my back. Ears always ringing.. just a bit. Heart beating faster and harder. Eyes stinging.. always on the verge of emptying. Another year. .. because life keeps happening. Why couldn’t I save her? Why couldn’t I relieve her pain? Stop her suffering? did i at all baby? was it ever not excruciating? This year is so different though. I knew exactly what I wanted to do. What made sense for all of us and I was able to make it happen. There was freedom in that. Freedom. Strength. Comfort in having a plan that felt right But not this year. This year its all up in the air. And nothing not a damned thing feels right. ..because[…]

double agent

So why are you doing this? (the whole fluttering campaign)  To keep the promise you made to Jennifer? (Unravel itself) I was asked that today in a interview. I wish I could say yes. But its simply not the truth. I am doing it because I am selfish and I know it could be another one of my babies again.. Or my friends kids.. or my nephew or niece. Experience does not make one immune to childhood cancer. This is why I am committed to Unraveling pediatric cancer. Jennifer is gone. Curing cancer does nothing for her .. i just want my baby back And I am selfish. I am doing this so people say her name. If everybody that orders a kit moves it nightly that 10, 500 houses that see the dragonflies.. and learn the facts.. and maybe they even say her name. Maybe enough people whisper her[…]

still brave

As yet another 12th comes closer I start to think about her death constantly. About what I was doing and feeling on February 9th. Remember with me..  That ring.. I remember that day. My friend coming to get it to try to save it for me.. How I hated having it off for a few hours. I love it so much. Its more precious to me than any other piece of jewelry I have ever owned. There are a lot of memorial tattoos ideas I am marinating on.. But that ring marked on me forever is for sure happening. I don’t often re-read my blogs. But I am glad I did with that one.. because it reminds me of who she was. The silly spunky way she would ask for the ring back. . and then give it to me over .. How happy she was to see me wearing[…]