
Its kid time for us right now. Time we had planned to celebrate all the great things about their sister and about them. To show them in actionable and tangible ways how much they all mean to us. …but you know how the best laid plans always seem to turn out.. Rain. Sickness .. The […]

** I wrote this last week .. but never actually shared it.. I can’t remember why now! ** I need to write.. I want to write but something keeps stopping me. Like I am just scared to let all that is bubbling inside of me out. This weekend was a lot. A lot. It […]

Sometimes the empty is so consuming, sometimes the reality that she is gone slaps me. Sometimes my ache for her is more subtle.. and another persons wound more crucial to attend to. This weekend was a bit of both. We went camping… without her… well without all of her. I had the keepsake of her […]

I came home yesterday to a clean house.. boys happily playing at their coco and papas and a meal on the table. Oh how I love this man. But the thing I noticed first was baby Charlotte in her frozen sisters dress turned shirt. I had them made.. one for each of my daughters. As […]

I was invited to this thing called a nano course here at Stanford. Its a small invite only week long conference. The basic idea is to train some parents/foundation people to be liaisons for the medical community. What that means is much of what I was taught went over my head!! Some easy take aways […]
Music. Today was a day of music and songs. Both things important to Jennifer. She made up her own songs and she loved to sing along with ones we were listening to. We have been continuing the sticker charts for the boys. Even though last night wasn’t a stellar performance we took them out for breakfast […]
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