Tag: dipg jonathan struggles


Vacation time… . . . something I should be so happy about and grateful for.. There are certainly parts of it I am. The people that have opened up their vacation home to us…I am grateful for generous people.. That I have 3 living and healthy (I hope…I think) children.. immensely grateful.. but also full of longing for the 1 that’s missing.. the one that will always be missing.. I write it.. but I still don’t believe it. Downloading the hundreds of pictures from this trip I noticed all the ways we carried her with us. .. . like this one with  baby Charlotte snuggled under Jennifer’s blanket.. and I think.. I cannot wait to show her.. Then I just take a deep breath..close my eyes and wait. Reality hits.. ..hits so hard I nearly fall out of my seat. Reality sucks. The night before we left for the beach[…]


Just watched her services for the first time. Just me and her pinkie and nigh nigh. .. . kinda feel like I was in a boxing match. .. .i lost. Badly. I feel a weight on my shoulders.. pushing my down. So heavy. I thought it would start to get lighter? . .. its not. Its getting heavier. I smile. I laugh. I talk. It all seems fine. Its not. I am so broken. How is it that I hurt so much more now than I did a month ago? I watched her in that video and so violently wanted to touch her again . Even the sick her. Even as she struggled to hold on. I would take that her back in a heartbeat…even just for a heartbeat I would choose to end my suffering over hers. Oh my god..how horrible am I? I am supposed to be happy[…]