Diffuse Intrinsic Pontine Glioma Archives - Page 6 of 7 - Unravel Pediatric Cancer's Blog

Read personal stories from our founder and Jennifer's mommy, Libby, along with other Warrior Moms and news from our Unravel team.

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the 23rd -12th-

January 12, 2016

12th. I am supposed to be working right now. I have a follow up presentation at Genetech to prepare for next week. January 12th. Kids are at school and at my moms so I can write it in a solid block of time and get myself prepared. Its a big deal presentation. 1 month until […]

she was here

January 7, 2016

I have pulled away from blogging. I have lots of excuses and reasons for it… But I do miss it. The release it gives me.. But especially the connection it gives me to my daughter. jennifer I feel so distant from her right now. So much so I find myself wondering if she was real. […]

her Christmas gift

December 23, 2015

We woke up all with Jennifer on our hearts and minds… And as it turns out the feeling was mutual. My niece came over last night and saved Christmas for the second year in a row. She came over to wrap presents for my kids. Without her to talk with and to honestly do most […]

dirty truth

December 22, 2015

Grinding. Heavy. Sharp. Never the words I wold have imagined myself using to describe Christmas time. Short. Sensitive. Hurting. Never the words I would have imagined my husband using to describe us this time of year. Everyday is just hard. No other way to describe it. The ache for her is palpable. The memories of […]

love wasn’t enough..

December 17, 2015

Christmas is almost here.  A day I counted down to and used to love. Even more after having children then I did even as a child. It was pure magic to get to experience it with them.. I’ve lost that. I’m sad. I miss my daughter. I look at her stocking and hate that I […]

a napkin

December 16, 2015

**** sometimes I write posts and don’t post them right away. This is one of those written in August**** Trying to prepare for Jonathan to start kindergarten. .It forces answers a lot of questions and fears I have been lucky enough to avoid. But it seems to help a new crop of them bloom. We […]

simple complication

December 9, 2015

Don’t stop moving.. Don’t stop doing. .. Don’t stop going..I think that’s the key for me right now. The only way I am still standing. ..perhaps standing is a stretch.. But I am upright. Because the moment I am not fully occupied in something the tears find me. A 15 minute drive in the car […]

tomorrow

December 4, 2015

Tomorrow I will dust myself off.. Tomorrow I will pick myself up … but today.. Today I crumble. Today my 2 year old toddles over to me and asks to be picked up. Today she offers to kiss my owie and wipes away my tears. Today we start to clean up the garage.. and find […]

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