Diffuse Intrinsic Pontine Glioma Archives - Page 4 of 7 - Unravel Pediatric Cancer's Blog

Read personal stories from our founder and Jennifer's mommy, Libby, along with other Warrior Moms and news from our chapter Ambassadors.

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NYC

April 27, 2016

Life moves so quickly sometimes. I thought while I was in New York I would carve out time to blog, but we were so busy I didn’t. And then coming home I have just been trying to get the house stuff and kids in order. So for those that don’t follow on Facebook (and if […]

cool kids table

March 28, 2016

I’m jealous. Of things I never ever would have imagined feeling jealousy over. But cancer has changed me. Losing my daughter has changed me. I see the bonds other cancer families have created through time spent wandering the halls of the hospital and I want that. When I see them getting together.. those surviving and […]

down the aisle

March 21, 2016

So I had my day planned.. . I was going to practice my speech for the upcoming MNO this weekend since I haven’t done it yet .. and then maybe carve out time to blog about how often people are surprised by my smiles.. and the joy they see in my family that is ALWAYS present.. […]

so i lied

March 3, 2016

I try to be honest. Especially in this new life we have been handed.. But I am finding I have to lie sometimes. To the outside world and my kids. With a smile that covers up the falling apart happening inside at that exact moment.. The surprising hard moments are often times the worst ones. […]

unrelenting questions

February 28, 2016

My days seem to be so full of questions. Unrelenting questions that most will never ever have an answer. Sometimes I wonder.. why do things happen the way they do… Why does she send me the things I believe are signs the way she does. . A few days ago I was at Starbucks and saw a […]

gray

February 22, 2016

Definition of gray a. of the color gray b. tending toward gray c. dull in color having the hair gray clothed in gray a. lacking cheer or brightness in mood, outlook, style, or flavor; also: dismal, gloomy<a gray day> b. prosaically ordinary: dull, uninteresting having an intermediate and often vaguely defined position, condition, or character     I am gray. I […]

Seattle in pictures

February 18, 2016

  Seattle was great! So many memories made.. and difference to be made. We gave over 130,000 into the hands of some incredible and dedicated researchers. Thank you! I didn’t tell Jonathan until the night before our trip that we were going somewhere and he didn’t know it was on a plane until we got […]

the day after..

February 14, 2016

The 13th is actually the worst day for me I think. . That whole day after thing. When Jennifer died.. that first 12th.. I tried to stay up until midnight .. but I physically couldn’t do it. I knew that after that day was done would be the start of a lifetime of days of […]

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