Tag: childhood cancer

10th birthday

10. she should be 10. Double digits. what a big deal. Except she isn’t here.. This is the time of year when I can really remember her.. When I have moments.. days even I can remember so vividly.. Hauntingly vividly.. When she was sick.. when she was dying.. But not her 6th birthday.. There are so many holes in that day.. So I ask about it. I ask to hear the same stories .. Where were you? Who told you? What did you think? .. I guess thats really all I ever want.. To hear your stories. . over and over again. . She should be 10.. but she is forever 6. .. And all we have is stories and memories.. My brain stumbles often.. So if you have 1 or 50 stories of her.. If they take you an hour or a minute to tell.. please . .. please[…]

six

Six. Never has a number had such power over me. Forever 6. My eldest child is eternally six years old.. Told on that birthday that she wouldn’t make it see seven. Her younger brother is 7.. and tomorrow her baby brother will also be 6. how? How is that even possible. Her bubbas.. I woke him this morning like I do the every morning before their birthdays.. Welcoming them to their final day of their current age. . But as I said the words .. ” Wake up to your last day of 5..” I felt a rush of cold through my veins. A cold and palpable fear. please help me keep him safe..  I’ve heard that military/police term of “watch your 6”.. and its resonated lately.. I had a feeling as to what it meant.. But I looked it up to be sure.. the defintion.. “6:00 is what lies[…]

What’s it like- living with child loss

Whats it like? What’s it like to be you? I see it. I think that is probably the number 1 question I see burning behind people’s eyes that is never asked. Though it’s hinted to… in the escape of words like I can’t imagine. .. So I’ll tell you.. It’s showing up to drop my son off late at school.. walking him into the cafeteria to get one last hug as he drops off his lunch box. Something is going on.. lots of kids and fun. Its seeing a mom who asks if I am ready for the craziness.. It’s asking what and hearing that its the 3rd grade arcade day. Its the wonder for just a moment.. until you can feel the ground move beneath you.. She should be in there.. And the gym that was moments ago just 15 feet away somehow becomes miles away.. at the end[…]

earthquake country

I live in earthquake country.. I always have.. but now its more. Now I exist in it too.. I am always ready.. vigilant for any potential tremors. But that’s what makes them so scary .. you never know when they will hit.. Even when they start.. you just never know how high they will register on the Richter scale.. I already know. As my fingers hit the keyboard I already know .. this might be one of those posts I never publish.. Because I know whats eating at me. .. something I struggle too admit to myself .. let alone out loud.. My jealousy. My heartbreak in the middle of others joy. The birth of my niece. Yes of course seeing a healthy baby… of remembering what it was like to first have my Jennifer placed in my arms.. Of wanting so desperately to go back.. to get those years[…]

do you get counseling..

I decided to blog about some FAQs and comments that I get..In particular I notice that as time goes on I get more judgmental themed comments on the blog. Im ok with that.. I have a thickish skin. .. But i’d be lying if I said it wasn’t part of the reason I blog publicly less .. I still need the release I get from writing.. but it does make me more hesitant to share.. I am realizing more and more how misunderstood the way I am choosing to do this whole grief thing is.. So I figured why not tackle a few of those constants.. or the ones that have bugged me the most. ** “Do you get counseling, you need counseling**”. I try to explain it this way. One. I need lots of counseling, A “ish-ton” one might say. So I get it in a mulititue of ways.[…]

the 3rd 12th

Its almost here.. That invisible yet powerful clock has almost come full circle.. .to mark off yet another year without the girl that made me a mommy. i thought that was it. i thought the brutal road to being your mommy meant i paid my dues. ..   Sunday will mark 3 years.. 3 years since she I last touched my Jennifer’s warm skin. .. last heard her jagged and raspy breathing. I was so scared she wouldn’t let me be there .. be awake when she died. 3 years ago I was asking myself unanswerable questions.. ones I still am asking today.. That day .. those worries I wrote about then.. I was right. It is EXACTLY how I feel today. .. She let me though.. She gave me so many gifts those final hours. Through her suffering she remained the girl she had always been.. Kind. Giving. Generous. Trusting.[…]

this christmas

We made it through the holidays.. It wasn’t pretty a lot of the time.. But really thats not my goal anymore. Its just to make it through. To celebrate the joys.. and be ok with the sads. To say good riddance to the passing of a year without her and try to not dread the start of year another year without her.. Christmas was just a crap day. One where everything seemed to just go wrong. … From toys breaking.. to meals not cooking right.. Tony even had to go into work. The culmination of the day was the kicker..  I turned the corner from our kitchen to the hallway to be greeted by water. Charlotte had stuffed too much toilet paper and for 20 mins it kept flushing.. But maybe that was a good thing.. Because we all banded together to clean it up.. and keep little hands from[…]

forget

I look at her picture. And I want to grab her out of it. To feel her warmth again..I just want to grab her by the shoulders.. and shoulders. .. her shoulders .. remember oh God.. please don’t let me forget.. her shoulders .. my hands could perfectly cup them. If I moved my thumbs inward I could feel that bony bump right there.. They curved in slightly.. I think . ..I think she hunched just a tiny bit. Oh my God. Is that her? Or is it Jonathan? please .. oh please. jennifer. no. no. no. its like i am losing you again. Piece by piece she was stolen. And now it happens again. As I struggle against my own brain to remember her. Its like a grainy cell phone picture.. We have tally marks on the wall for the kids heights. I walk past and will touch where[…]

mom struggles

I am trying. Trying to be a better mom. Trying to concentrate on them.. Trying to remember the mom I used to be and bring that back to life.. at least a little bit. Jennifer got some of the best of me .. and I am scared she took it with her.. It started on Halloween.. Jonathan was sick so he stayed home with Tony and I took the others trick or treating (almost all of us got sick after that so big sorry to anybody we shared germs with!) It was the first holiday or should be hard day that wasn’t hard. Because it wasn’t just one missing .. it was two. And my mind. My heart were easily convinced that they were both at home.. Waiting and playing with their Daddy.   And the carefree I felt. The absence of that heavy grief.. it was nice. It was empowering.. And[…]

Should

Should .. She should be here. . she should be alive.. That word carries a lot of weight with me right now. They cover me.. and they snuff out the light.. The should’s are dark and consuming. The should nots are heavy and constricting, they are what I don’t want to admit. . She should be growing and changing.. I should already have a wall filled with her school pictures. .. Instead we are tying to figure out what to do with Jonathan’s. . I should be posting his picture.. so proud of the handsome boy he is.. and how much he has changed and grown in the past 12 months. .. I should be happy for my friends and their school pictures.. Especially the kinder ones. . I should be. I’m not. I look at them with a mix of longing, jealousy and anger. . I long for it. For[…]

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