Tag: childhood cancer statistics

giving tuesday

Our country has been in such turmoil since the recent elections. Emotions are running high and strong. . Marching in the street to protest or to celebrate. Liberal or Conservative, Clinton or Trump.. The overarching thing I see is that people care. People are invested and they are hopeful. People are scared, they are worried for themselves and their communities.. I get it. In a different kind of way. I get it. I think thats kinda my life all the time now too.. I have moments of great hope. When I see success when I see change is coming and happening. I have moments of great fear. Worried for childhood cancer to take up residence in my home again.. Fear that all this effort will never make a difference. Heartbroken over the everyday loss of life. 100 – 140. That’s how many parents have kissed their child for the last time[…]

20 weeks

We got the mission statement completed. I should feel happy. I should feel relieved. One thing off my plate. .. But all I can think is 20 weeks. Tomorrow is 20 weeks. .. I have never been so sad. I never knew sadness could permeate to these depths of a person without destroying them. I hurt. I ache with such a fierceness I feel like I might be ripped apart from the inside out.   20 weeks.. why? Why did this happen? Why are we allowing it to still happen to 7 more kids today.. and 7 more tomorrow.  I have people from our glitter squad calling Senator’s offices to ask for the specific aide by title that we should write to about the lack of funding. And you know what some offices are saying.. No. We won’t give out there email address! I am so frustrated, disappointed, angry ..[…]

…but not really

Looking through the pictures for that last post really got to me.. About what pediatric cancer really looks like.. Its not just bald kids.. or swollen faces. Or feeding tubes and barf bags.. Often times there is something even worse that all of that.. being left behind.                 And then I get really angry. This is not the way its supposed to be. It is not the way it has to be. 60 kids were on that stage this morning. In just over a week. 8.5 days. That many children will die from cancer in this country.   7 a day. It is not rare. I am not alone. Far from it. Cancer is the number one disease killer of children. (national cancer institute) It is the number two killer of our kids. Number one is accidents.. which is such a broad term so[…]