Tag: 10 months

donations.. come in all sorts of ways

Friday was another 12th. Marking 10 months since I held my daughter last. I have promised myself that I will spend every 12th doing something for them because of her. This month for the first time the “them” wasn’t my 3 surviving kids.. I did it with my kids.. but did it for the kids still in the fight for their life. This month I was privileged enough to give Dr. Monje the $70,000 check from our first years fluttering campaign.   We had prepped the boys for it.. let them know we were going to a lab where the scientists are working to try and find a cure. Told them we were bringing a donation from the families that raised money by fluttering.     We were mostly worried about how it might be for Jonathan. Earlier that morning I had talked about my 2 sickie boys to them. About how they[…]

10 months

  JENNIFER JENNIFER JENNIFER jennifer.. I miss you. With every single cell of my body right now. I knew my heart would break when you left. I didn’t know it was even possible for my whole body to break.. for my heart to be so shattered .. for my soul to cry out for you. I watched your video tonight. The one we played at your services. And I wanted to scratch my own skin off. Pull my soul out of this broken body.. and throw it up to you. 10 months. Seriously. How is that even possible? Its like it was yesterday .. and forever ago. How am I going to make it through Christmas? I don’t want to. I don’t want to do it without you. I don’t think I can. Im not strong enough Jennifer. I look at your stocking. I want a little girl to shop[…]


Tony and I went to our counseling tonight. .. well if I am being honest, tonight Tony sat on the couch during my counseling. It quickly morphed into being all about me tonight. We talked guilt. My guilt over everything. e.v.e.r.y.t.h.i.n.g. Its crippling. And I am not sure how to get over it.. get through it. I will never have the chance to say I am sorry. Never have the chance to make it up to her. No do overs. All my successes with Jennifer have happened .. as have my failures. Thats a bitter cold reality for a bereaved mommy. I feel trapped and overwhelmed in the dark memories. Of where I was.. who I was right now 10 months ago. Holding her. Talking to her. Letting the last of our family come say goodbye to her. Why couldn’t I stop this? Why couldn’t I save her? my baby.[…]