Category: grieving after 2 years

my grief

  Control. I thrive when I feel like I am in control of my emotions. Its why I am able to speak so openly in public about our journey. .. because I know its coming. Because its on my terms. Surprise. I do not do well with the surprise grief attacks. When it comes and attacks me unexpectedly. I try to always be prepared. Never really relaxed with other people around.. Vigilant against the potential for attack. That’s not life though is it? I especially hate that the surprise hooks of grief seem to grab onto me at the worst possible times.. Surrounded by people .. when I should be anything but sad. When I should be celebrating somebody else .. It’s a piece of this whole life long journey I felt so unprepared for. The guilt and shame that seems to come with the sometimes overwhelming and dark emotions[…]

meant to be

**As I was typing the last word in this entry this song started playing.. Open it in another window as you read this.. Because I think she wants me to share her message to me, with you..** ok buggers. ok baby.. ok.. i love you. i love you. i love you I was talking with a friend today.. a new friend from my new life. My AD life.. This friends job is to fundraise for researchers.. well kinda. Her goal is really to raise money to save kids. To stop them from suffering.. from dying. . Its a big deal. It matters and it can be all consuming. The pressure can be overwhelming at times. I get it. So much. .. except I don’t. .. She asked how I dealt with it. Since we are so similar. How do I cope with that anxiety and pressure. The need to do[…]

maybe the kids have it right..

Maybe Jennifer is painting the sky pink for us right now. I wish she was with us. Just here in the car right now. Im going to blow these bubbles up to heaven. Sissy can pop them. Can I sleep in here? I dreamt about Jennifer. I miss her and I am scared. Constant. My missing of her is a constant living part of me. And it is part of my kids too. Those are the comments I have heard in just the past few days. Just sudden and randomly they share,  I have them too.. I just don’t share mine. To protect them.. or whoever I am with. I keep those thoughts silent. To not let it seem like my life is overtaken by the one I can’t touch anymore. My kids though have the freedom to give those thoughts and wishes and hopes a voice. They don’t have[…]

is 3 real?

Tomorrow morning I wake up to a 3 year old little girl… and it makes me sick to my stomach. and really really angry. I, like all moms, get a touch melancholy about their birthdays.. about how quickly time passes once you are a mom.. But my ridiculous decorating the night before their birthday has helped it become a fun night.. Birthday eve. The other kids get to stay up and help decorate and wrap presents. I make the birthday kid a birthday chair horrifically decorated in balloons and streamers.. Its made me happy to have them turn a year older. A day all about them. . and I like giving them that. Nothing expensive.. just attention and traditions. I’m usually excited about their birthdays. .. even after Jennifer died I still have loved.. maybe even more if thats possible.. decorating and getting the house all ready after the birthday[…]

a ocean for mothers day

I think grief is like the ocean. .. Powerful and constant. It comes in and goes out. Sometimes a storm passes and it becomes violent and dark. .. sometimes it is calm and peaceful. But it is always moving, always changing, and you have to keep kicking or you will drown. That can be exhausting.. I don’t want to drown. I don’t want to be pulled too far out from them.. my shore.  I made it through another mothers day..  I woke up to that swollen feeling in my eyes that let me know I was crying in my sleep. My mind is merciful in forgetting  what I was dreaming about.. The day was good. Blemished and bruised but so very beautiful. I am grateful to this blog for that. By digging and releasing I was able to be open to the beauty of the day versus just obsessing on the[…]

forgiveness for mothers day

Another mothers day is coming. .. I dread it. And then I feel so much guilt over that. I still have my amazing mom and I know so many others that don’t. .I am lucky not just to still have a mom.. but to have her be MY mom and my kids Coco. I am a mother to 4 of the most incredible people you could ever hope to meet. They love me. They will want to show me they love me… in simple and often sticky ways. ..but .. the one that made me a mommy. The one that bestowed the most important title on me is missing.  I remember that first year so well. And that first Fathers day. How surreal it was after years of infertility.. 5 losses.. We finally got to celebrate. Tony and I promised each other we would always make a big deal out[…]

NYC

Life moves so quickly sometimes. I thought while I was in New York I would carve out time to blog, but we were so busy I didn’t. And then coming home I have just been trying to get the house stuff and kids in order. So for those that don’t follow on Facebook (and if you don’t you should!) Tony, Bridgette and I went to New York to give money to a few labs as well as meet with additional ones we are considering funding and a few other East Coast foundations. I went through a lot of surprising emotions on the trip.. Just even being there was bittersweet. Its always been a dream of mine to visit New York. But we chose to have me be a stay at home mom and figured there would be no reason to travel that way for a long time. Then Jennifer got[…]

counting heads

I think all moms will get this.. but certainly moms of bigger families. We count. 1,2,3,4.. Leaving places.. in the middle of places. . we count to be sure we have all of our little chicks accounted for. I think its automatic, we aren’t even aware its happening.. like a counting program running in the background. But when that number is off all other systems shut down and an alarm sounds. One is missing. That happened all the time after she died. I was still counting for 4.. then when the count was only 3 my heart would race.. my eyes would automatically start darting around. And I would hurt so much that moment later realizing over and over again I was back to only counting for 3. .. I don’t know when I stopped. Part of me can’t believe I stopped.. and I feel guilty that I ever did[…]

o for outstanding

Those sudden surprise moments.. The shock of being unprepared is like jumping into the freezing cold water of grief. .. It steals your breathe and even when you start to regain it.. its stays sharp and ragged. Your heart is beating hard and fast and you look around disoriented. .. fight or flight they call it right? It happened the other night getting Jonathan’s report card. Tony was starting to talk to him about a few things and I stopped him and asked if we could talk privately later about how we wanted to approach it.. To be sure we can be on the same page.. no big deal. normal parenting.. Except.. nothing is normal parenting for us anymore. When will I learn that? He said “yes good point” .. and looked at our sweet blue eyed boy and elaborated ” That this was uncharted territory for us.. ” At[…]

cool kids table

I’m jealous. Of things I never ever would have imagined feeling jealousy over. But cancer has changed me. Losing my daughter has changed me. I see the bonds other cancer families have created through time spent wandering the halls of the hospital and I want that. When I see them getting together.. those surviving and those still fighting a feel like I am walking around the school cafeteria with a tray in my hand.. with only one table to sit at. Most of the tables filled with parents who haven’t carried a cancer diagnosis and they look away and down when I walk close.. Truth is.. even when welcomed I can’t seem to figure out how to lay my tray down and sit anyways. The table is too smooth too shiny .. I see another one and a part of me longs so desperately to sit there too.. Kids that[…]