Category: childhood cancer

silence

**another one I waited to post, I had to clear it with Tony first** How can silence be so deafening? I came home from last Saturday nights fundraiser on a bit of a high to a husband that was really hurting .. really struggling. Missing his daughter. His first case of love at first site. Tony loves me.. tremendously .. but its different. He was smitten. Completely. Absolutely. Totally. From the first moment he laid eyes on her. And I know she felt the same way. But he can’t touch her anymore. He can’t hold her or laugh with her. And something inside him is broken. He loves me. He adores with everything he is our 3 surviving kids. But something is broken. . a place inside that can never be fixed or healed. Its a deep and protected place. The place in his heart that she carved out that was[…]

numb

I feel an invisible force on my foot.. trying to push it down.. put the brakes on this life.. Just make it all stop. . In 4 days I will have been a cancer mom for a whole year. In 4 days.. She will truly be forever 6.. because she won’t be here to turn 7. no no no no Today was the one year anniversary of the last full great day.. free day. .. happy day. The day before I picked her up from school and she threw up in her lap.. the day before we took her to the ER and she was admitted. I wanted to do something that symbolized that.. something free and fun. We went to the high school football games tonight, my brother and brother in laws team vs another brothers team.  It was a hour or so drive each way.. nice for me I[…]

this last

You never know the lasts..I wrote about that before.. wondering if I would know the lasts as they came to pass.. I didn’t. Surprisingly I still don’t. I got mail for her. Jennifer Lynn Kranz.   It was ironically enough from the first eye dr we saw.. the one that said we needed to take her to a specialist. .. that lead us to a MRI that then discovered the tumor that would turn our lives upside down. .. eventually ripping us apart. Will that be the last piece of mail I get for her? The last time I see her name in my mail box?   How is that even possible.. my daughter. My should be almost 7 yr old. Sometimes it feels like she is being wiped off the face of this earth. She was stolen from us 8 months ago.. but somehow I feel like I lose[…]

5 minutes later

** I wrote this last week .. but never actually shared it.. I can’t remember why now! **   I need to write.. I want to write but something keeps stopping me. Like I am just scared to let all that is bubbling inside of me out. This weekend was a lot. A lot. It started out with her party.. Saturday morning we finished up decorating the cupcakes and then it was time to go. To get in the car for a thank you to our community and all the people that cared about our family . . and a chance to celebrate with them and our friends this spectacular girl of ours. But I was scared to go.. about how hard this might really be. Was it the right choice for me and Tony.. the right choice for our kids. I make none of the decisions lightly.. but that[…]

fantasy

I feel like a wounded animal. I feel like I am slowly bleeding out. I remember being pregnant and dairy products with dates stamped on it past my due date.. how thrilling that was. Today I pulled out strong cheese for the kids and it was stamped with a date past the one year anniversary of her death. . how? why? no? Today seeing that sent a chill right through me. In a few months I will be done with all the firsts without her.. and just onto the rest of time.. Holiday after holiday.. one less.. Day after day being incomplete. I wonder if one day I will get used to it? Adjust to this new life of mine.. without her. Because right now its a lot like a phantom limb. Like I go to stand on the life I was had only to fall down since its no[…]

6 years

Tonight I should be practicing for a speech I am giving tomorrow. I have only gone through it twice now.. But I can’t seem to do it. Im not sure why. If its something swirling inside of me.. waiting for me to write and get it out.. Or if its too hard to do. Too hard to say the words out loud.. look at pictures of her…remember. Another cancer mom wrote about it .. wrote about how she doesn’t want to forget a thing about her son.. but also can’t bear to remember. I get that. How as the numbness is slowly wearing off that its hurts even more to allow myself to reach for her. Because it is just so devastating. But actually I think thats likely not accurate for me. .. not yet at least. Now the yearn is still so much stronger than I can even fight. I[…]

sorrow

*** I debated sharing this. I wrote it last week. Its just a snapshot. A time in the midst of my desperate sorrow I was able to write *** my heart. sometimes i wonder if i can take this. i miss her so much so incredibly much more than i ever thought possible. i cry and my body contorts.. forcefully .. against my will. i have no control over it. i wail . i sob. noises i didn’t know i could make coming out of me. i fold from the inside i double over only to throw my body back again. forcefully. silence. pouring out of me. a silence so deep and so dark i am drenched .. soaking wet from my tears and sweat when i miss her like this.. its consuming my hands hurt.. from being clenched so tightly … grinding into my forehead pushing my head backwards[…]

8 months

I used to love the Fall.. love when the seasons started to change and the weather got a little crisper.. Loved it getting dark earlier.. I hate it. I hate all of it. Its just leading to horrible days.. ones that used to be so full of joy .. that I am terrified of having to go through. A birthday without her .. Halloween without her.. thanksgiving and christmas and new years.. all without her.. and as time marches and the weather gets colder.. we hit the anniversary .. is there seriously no other word for it?!?! of her death. no. no. no. I used to love halloween. She was due on halloween.. Its not just a reminder that she is not here. For me its more with halloween. Its all the decorations. Tombstones and skeletons.. ghosts and zombies … all things to say that death is scary. …but Jennifer[…]

party

I burnt myself tonight pulling a batch of gluten free cupcakes out of the oven. Cupcakes we baked for a birthday girl that is no longer here. A party that won’t just be filled with all her first grade buddies..Its not even really a birthday party .. its a thank you to all the people that have cared about us over the past year.. We are so very very grateful. I thought it was a good idea.. Now I’m not so sure. I look at the balloons I bought with my 3 littlest.. for the big sister they will eventually outgrow. She loved to decorate the things I baked . They never looked pretty but she was always so very proud .. I will do it with all 3 of her siblings tomorrow. I will give Nicholas his own tray since I know he will stick his fingers in them.[…]

crawl

Last week we went to the cemetery for our first picnic, just me and the kids. Jonathan’s request. He asked to skip preschool to go there and I promised right after we picked him up we could go. That seemed to assuage him and the picnic plan made him really happy. On the drive to school the boys asked questions.. I found myself explaining to my 5 and 3 yr olds that just like they have a bedroom in our home.. sissy has a grave in the cemetery.. The gravity of that sentence made my stomach lurch. . but the boys seemed to relate well to it. My daughter.. has a grave like they have a bedroom.. a room that was once hers.. There is another little girl buried near our Jennifer. She was almost 2. It was recently her birthday..Happy birthday Emily.15 years they have had to celebrate their baby[…]