Month: April 2017

a well earned week

I feel like there is a day for everything. From the fun.. like National Garlic day ( April 19th) and National watermelon day (August 3rd) to the serious National Pediatric Hematology/Oncology Nurses Day and National Organ Donors Day (Feb 14th). There seems to be a day dedicated to most things.. But some deserve more than a day.. Its National Volunteer week.. And one thing I know for sure.. people who give of themselves. .. they deserve the thanks. I honestly didn’t even know this was a thing when I wrote my last post.. That I think explains why our volunteers are so important to me personally. But it goes beyond my own personal need for Unravel. It goes towards the researchers and the money YOU all have raised. I have seen so many people and especially families that have dedicated and donated so much of their time to Unravel.. with one[…]

belated and genuine thank you

When Jennifer was still here fighting and I started blogging I feel like everyday I had big realizations and break throughs.. After she died it was the same. I was constantly making huge deep connections within myself.. Now its rarer that it happens.. In part because its just harder to carve out this much needed time to sit and “talk” with myself.. And because maybe that’s another sign of my growth within this journey.. Not having the need to be making so many life defining or changing realizations.. But it happened recently.. and once they started I feel like its been happening a lot.. I have so much bottled up inside.. not so paitiently waiting for me to make the time to sit like this.. To take it out and look at it and begin to understand it. Texas. We recently went there for Unravel. .. I’ve always wanted to[…]

my question for you..

What does don’t be sorry be active mean? It means I know you are sorry I lost my daughter .. I know you are sorry she suffered.. I know you are sorry she is gone and sorry that maybe even you miss her too… But that sorry. Its not enough. Not enough because she is still fighting.. Her cells .. living and growing pieces of her.. they are fighting .. SHE is fighting but she needs help. Money. Awareness. Help to make both of those things happen. Sorry isn’t enough for Jennifer. And. And for your kids. Sorry isn’t enough for any of our kids. Sorry doesn’t stop the tragedy.. the death…the suffering from happening. It just protects your eyes.. unless.. . it get drops inside your own home and you simply cannot avert your eyes any longer. Let me pose this question. Would you do more? Would you do it[…]