Up researching Christmas gifts for the kids. Mostly books since they love to be read to. Never would have imagined I would be trying to find books to teach my boys and baby about losing their sister. And trying to find a book to help me speaking to Jennifer about heaven and God…The good […]
Today after radiation she suffered a terrible headache. Usually they wait to get me to come into recovery until she is awake since she wakes so easily and happily. Today when I walked in and saw her it was very obvious she was in a good deal of pain. She had her head buried and […]
I am not a tech savvy mama…not by any stretch of the imagination. So me learning how to put pictures on the blog is quite an accomplishment. In doing so I have found myself lost in pictures of our kids…pre-diagnosis. Its like I don’t recognize them anymore…we are all so different….so forever changed. I remember […]
Tonight I hurt. Tonight I ache. Tonight I am sad. Tonight she giggled and laughed with all her might. Will I forget that sound? Tonight she asked why….I ask it too baby and I wish I had a answer for you. One day I will walk into her room…the one she shares with her brother […]
Its so hard to try to get into a childs mind…to understand or even know what they are thinking. I want to anticipate Jennifer’s needs and fears but the kid sometimes seem to be coming out of left field. We got into a extended stay apartment today but she didn’t want to come. She was […]
This experience has showed me the goodness in people. We are so grateful for all the love and prayers, the monetary support and meals being delivered to my men folk back home. I am trying really hard to help JLK see how lucky we are and to teach her to find ways to pay it […]
9 months. I just need to write it. Those words… to get it all out. If you have googled or read my link then you know the average life span for a child after being diagnosed with DIPG is 9 months. On her birthday when we were first given the prognosis we were told 1.5-2 […]
My fingers itch to write. I find myself thinking about journaling now…it is such a release for me I think I am doing it a little in my head all day long and finding little ways to release all the emotion that is stirring inside of me. Heres a kicker for you. We got another […]
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