Board of Directors
Libby serves on the board as one of Unravel’s Co-Founders. She is a teacher turned stay at home mom .. who has always enjoyed helping people by sharing her life experiences. Whether it was infertility and miscarriage.. adoption or a child with celiac disease she always found purpose this way. It came naturally to continue that as a mom to a child with cancer and surfacing and raising a family after the loss of that child.
Jennifer was my daughter… our first born. When you parent a living child you do whatever you can to protect them and as a parent to a child in heaven you do whatever you can to protect their memory. Unravel. .. specifically my blog allows me to do that. Raising both awareness about the facts of pediatric cancer and money to help the researchers I do for my surviving children. Jonathan, Nicholas, Charlotte and Bridgette.. Because I now know it could be them.. their best friend or the children I hope they are blessed on day to have. I hope one day that Unravel will not be needed because change will have happened.. but until then.. until there is a cure I will be here.
Carmen Murray is the Vice-President on the Board of Directors for Unravel and is looking forward to making a difference in Pediatric Cancer research. Prior to joining the Unravel team, she was on the executive board for Arms Wide Open Childhood Cancer Foundation (AWOCCF) for 2 years and was involved in organizing the annual Running Over Childhood Cancer (ROCC run in Gilroy) as well as “ Kids can’t fight cancer alone” dinner Gala in San Jose to benefit AWOCCF. She has been married for 11 years to her husband Scott and currently lives in Gilroy. Carmen is a full time Juvenile Probation Officer during the day and proud “warrior” mommy to Ty and her 3 year old twin girls, Siena and Isabella.
On May 2, 2008, my life was forever changed. My 16 month old son Ty, was diagnosed with stage 4 neuroblastoma. We were told he had a 30% chance of surviving 5 years. Ty endured very aggressive toxic treatment ( high dose chemo, radiation, stem cell transplant, antibody treatment which was only offered at Sloan Kettering Cancer Center in New York, and multiple surgeries). On April 7, 2010, he was finally declared “no evidence of disease” (NED), which means there are no detectable cancer cells in his body. Ty is now feeling the “late effects” from his treatment . He has a greater chance to develop a secondary cancer due to all the toxicity from the treatment he received to get him to become NED. We also live in fear of “relapse” as there is no cure for relapsed neuroblastoma. Being in this pediatric cancer world for the past 6 years, has opened my eyes to the horrors of pediatric cancer and it’s outdated treatment. I never knew the grim statistics for a child with cancer until I was thrown in this cancer world. Our cancer children deserve better…. they deserve a chance to live. I learned of “love4JLK” (Jennifer) in October 2013, from another mom at Ty’s school. I immediately began following Jennifer’s story and just fell in love with this little girl who I never had the opportunity of meeting. Jennifer was never even given a fair chance to fight her cancer, which is absolutely unacceptable to me. Jennifer should still be here. I will continue to fight for Ty, Jennifer, and all the children we have met along the way until a cure is found. I am so proud to be part of this amazing Unravel team, who are truly making a difference in this pediatric cancer world.
Tony is Treasurer and serves on the Board of Directors for Unravel. Tony is an Assistant Plant Manager for the largest uniform rental company in the industry. He enjoys spending his free time with his wife and kids either walking on the local levy or playing catch in the backyard.
Jennifer Lynn Kranz is my daughter and the loss of her has lit a fire within that I was not aware was possible, along with this fire, a hole is missing in my heart. She was daddy’s little girl and she had me wrapped around her finger since the moment she was born. My goal is to do whatever I can to support the scientists who want to and are making a difference in the pediatric cancer community. My hope is to help fund the research and inspire young ones to Unravel Pediatric Cancer.
Jody Pulford is on Unravel’s board of directors. She worked in technology public relations for 10 years and now has a small business. She lives in Gilroy with her husband and three children.
I believe that all childhood cancers will be curable in my lifetime. I believe that children deserve safer and more effective treatments. I believe there are scientists who can do these things – we just need to fund them. I believe that Unravel will continue to make a positive difference in the lives of children with cancer.
Coby Heinemann serves as Secretary on the Unravel Board of Directors. After working for her family’s construction business for 11 years, she currently works part-time in accounting for a local landscape construction company. She enjoys cooking, reading and being outdoors with her family and their Labrador, Bo. Coby lives in Gilroy with her husband, Marc, and their 6-year old daughter.
Ann serves on the Board of Directors for Unravel. Ann is a Registered Nurse, currently working with her hospital to implement a new electronic medical record. Her previous positions in healthcare have included working with postpartum woman and newborns, stroke patients, Traumatic Brain Injury (TBI) and spinal cord injuries (SCI). Ann, along with her husband Greg, have 5 children. When she isn’t at work or sleeping, Ann can usually be found watching high school football.
I was blessed to have Jennifer Kranz as my niece. Losing her precious spirit has fundamentally changed not only the lives of her parents and siblings, it has altered the landscape of all of her aunts, uncles and cousins. Even as a member of the medical world, I had no idea how severely underfunded pediatric cancer is. My overall goal with Unravel Pediatric Cancer is that no other family is EVER told that there is nothing, not a thing, that can be done to save their child. We can do better, we need to do better and we will do better.
Staff and Volunteers
Mark A. Neidig, Sr. CFRM
Executive Director/Chief Executive Officer
Mark is Executive Director and Chief Executive Officer of Unravel.
He was most recently the executive Director and CEO of Pennsylvania-based Kanzius Cancer Research Foundation whose succinct mission was to create national and global awareness of the Kanzius Noninvasive Radiowave Cancer Treatment and raise the funds necessary to prove its efficacy and accelerate the speed at which the research progressed to human trials. He assumed his role in July, 2009 to create and direct the Kanzius Foundation’s worldwide fundraising efforts, education/awareness known as “spreading the wave,” strategic planning and research oversight. Under Mark’s leadership the organization transformed from a regional dream to a global brand – receiving acclaim by winning the national Pepsi Refresh Everything project, the Ellen DeGeneres Pink Well Grant, the Million Dollar Challenge, and through face-to-face audiences with 60 Minutes’ Leslie Stahl, nationally syndicated television/radio host and political commentator Glenn Beck, former Speaker of the House John Boehner and House Minority Leader Nancy Pelosi just to name a few. Rarely can an organization boast of “Going Out-of-Business,” yet, Kanzius Cancer Research Foundation completed its mission and ceased operations on June 30, 2014 after successfully fulfilling their mission by funding all of the research necessary to prove the efficacy of the Kanzius technology and present it to the FDA for human trials.
Born and raised in Plymouth, Indiana, Mark has extensive corporate and non-profit leadership experience in Florida, Indiana, Washington DC and The Gambia, West Africa. An articulate and passionate motivational speaker, he effectively communicates to large audiences as well as intimate gatherings the message of hope for “a better way” of living. Mark and his wife, Debbie, reside in Orlando, Florida and have two grown sons and three grandchildren.
It’s not a job, it’s my passion. Cancer has plagued my life and that of so many of my family and friends; I refuse to accept existing traditional treatments of chemotherapy and radiation as a solution or the final option. As long as I have the fortitude, I will fight for children like Jennifer Lynn and those who have no voice. I joined Unravel because I want to drive that change in treatments and in the quality of life for our kids…and who knows, maybe even work myself out of another job when we have the cure!
Robyn Lomauro Grenning
Graphic Design Chair
Robyn Lomauro Grenning is the Creative Lead for Unravel Pediatric Cancer. It has been an honor for her to be involved with such a passionate group of people, who all put forth their most heartfelt focus in everything they do with Unravel. Robyn has been involved in the arts since she was a young child, which became a natural and obvious segway for her future as a designer. She began her design career in the world of advertising, and has since launched several businesses, one of them with an incredible team, and 2 others on her own. Robyn is married with 2 young children who keep her focused, motivated and passionate.
I learned about Jennifer and the Kranz family’s story through friends of mine who had posted about it on Facebook…I began reading Libby’s blog day after day and was horrified at the reality of what this incredible family was going through. Having a daughter the same age as Jennifer, who had also just started kindergarten, it became very real to me that this could happen to anyone. I learned so much information that I never knew before, these statistics, the severe lack of funding, the terminal diagnosis that you never hear about – if I wasn’t able to repair their unrelenting broken hearts, I was determined to help in some way. Once I heard that Libby + Tony planned to launch their own non-profit to raise money for research, I reached out to them and offered my design experience to help spread their message. I am so glad that I did, and so honored that they brought me in to be a part of this incredible team. I truly believe that with all of our hard work, spreading these statistics, continually fundraising and informing others who also simply did not know…we will make a difference and some day find a cure for this heartbreaking disease that currently owns the title of the #1 disease killer of our children.
Director of Social Media
Jill is the Director of Social Media for Unravel. Jill manages several brands across different industries and never can seem to hold still. Her life revolves around her family and loved ones but still manages to find time for community events, reading, hockey/baseball watching, and pretending to be a runner sometimes. Jill lives in the Sacramento area with her husband and youngest daughter while her oldest daughter is off at college. They all adore their labradoodle pup.
I met Libby and some of the Unravel team through mutual friends. I only “knew” Jennifer through pictures and words of their friends, but the loss of that sweet girl broke my heart. Through volunteering for Mama’s Night Out Sacramento, my eyes were further opened to the realities of pediatric cancer and I no longer could look the other way. I’m honored to be a part of Unravel and am inspired by these brave families every day.
Director of Operations
Sarah is the Director of Operations for Unravel. She manages our website, donor management system, and Fluttering teams. Her background is in Human Resources and is a techie by osmosis through her husband. She currently lives in the South Bay Area with her husband, two kids, and two very crazy cats.
I first met Libby when we were planning our weddings. A small group of us became fast friends and we were there for every step of Libby and Tony’s journey; including when we found out they were going to be mom and dad to Jennifer. After finding out Jennifer’s diagnosis with DIPG, I knew I would do whatever I could in the fight against pediatric cancer. Too many families have lost loved ones to cancer and I am eager to use my skills to be a part of Unravel and help change the statistics. Together we WILL find a cure.